Departamento de Reumatología, Hospital General de Mexico, Dr Balmis 148, 06726, Mexico City, Mexico.
Rockyview General Hospital, Calgary, Canada.
Rheumatol Int. 2018 Apr;38(Suppl 1):283-289. doi: 10.1007/s00296-018-3961-0. Epub 2018 Apr 7.
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Mexican Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (16% systemic, 16% oligoarticular, 30% RF positive polyarthritis, 38% other categories) and 99 healthy children, were enrolled at the paediatric rheumatology department of the Hospital General de Mexico. The JAMAR components discriminated well healthy subjects from JIA patients. However, there was no significant difference between healthy subjects and their affected peers in school related problem variable. All JAMAR components revealed good psychometric performances. In conclusion, the Mexican Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
《幼年特发性关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告的结局测量工具,能够全面评估儿童幼年特发性关节炎(JIA)的疾病状况。我们报告了 JAMAR 家长版和患者版的跨文化适应和验证结果,该问卷已在墨西哥西班牙语中进行了阅读理解测试。每个参与中心被要求在 100 名连续的 JIA 患者或 6 个月内连续看到的所有患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其父母施测 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:3 个李克特假设、地板/天花板效应、内部一致性、克朗巴赫α、量表间相关性、测试-重测信度和结构效度(收敛和判别效度)。共有 100 名 JIA 患者(16%全身型、16%少关节型、30%RF 阳性多关节炎型、38%其他类型)和 99 名健康儿童在墨西哥总医院儿科风湿病科登记。JAMAR 各组成部分很好地区分了健康受试者和 JIA 患者。然而,在与学校相关的问题变量中,健康受试者与他们受影响的同龄人之间没有显著差异。所有 JAMAR 组成部分都显示出良好的心理计量学性能。总之,JAMAR 的墨西哥西班牙语版本是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。