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青少年关节炎多维评估报告(JAMAR)的阿根廷西班牙语版。

The Argentinian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

机构信息

Hospital Sor María Ludovica, Servicio de Reumatologia, Unidad de Reumatologia, Calle 14 No 1631, 1900, La Plata, Argentina.

Rheumatology Section, Hospital General de Ninos Pedro de Elizalde, Buenos Aires, Argentina.

出版信息

Rheumatol Int. 2018 Apr;38(Suppl 1):51-58. doi: 10.1007/s00296-018-3934-3. Epub 2018 Apr 7.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Argentinian Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 373 JIA patients (23.1% systemic, 30.8% oligoarticular, 28.1% RF negative polyarthritis, 18% other categories) and 100 healthy children were enrolled in five centres. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related item. All JAMAR components revealed good psychometric performances. In conclusion, the Argentinian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

摘要

《青少年关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告结局测量工具,可全面评估儿童青少年特发性关节炎(JIA)患者的疾病状况。我们报告了家长版和患者版 JAMAR 在阿根廷西班牙语中的跨文化适应性和验证结果。我们测试了 10 名 JIA 家长和患者对问卷的阅读理解能力。每个参与中心都被要求在 100 名连续 JIA 患者或 6 个月内所有连续就诊的患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其家长发放 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫的 alpha、量表间相关性、重测信度和结构效度(收敛和区分效度)。共有 373 名 JIA 患者(23.1%全身型、30.8%少关节型、28.1% RF 阴性多关节型、18%其他类型)和 100 名健康儿童在五个中心接受了调查。JAMAR 各组成部分能很好地区分健康受试者和 JIA 患者。值得注意的是,在与学校相关的项目中,健康受试者与受影响的同龄人之间没有显著差异。所有 JAMAR 成分均表现出良好的心理计量学性能。总之,阿根廷西班牙语版的 JAMAR 是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。

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