Faculty of Medicine, University of Latvia, Riga, Latvia.
University Children Hospital, Riga, Latvia.
Rheumatol Int. 2018 Apr;38(Suppl 1):259-265. doi: 10.1007/s00296-018-3959-7. Epub 2018 Apr 7.
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Latvian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (2% systemic, 56% oligoarticular, 17% RF negative polyarthritis, 25% other categories) and 204 healthy children, were enrolled at the paediatric rheumatology centre. The JAMAR components discriminated healthy subjects from JIA patients, except for the paediatric rheumatology quality of life (HRQoL), psychosocial health (PsH) subscales, the HRQoL total score and for the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Latvian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
《青少年关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告的结局测量工具,能够全面评估儿童青少年特发性关节炎(JIA)患者的疾病状况。我们报告了 JAMAR 家长和患者版本在拉脱维亚语中的跨文化适应性和验证结果。我们在 10 名 JIA 家长和患者中测试了问卷的阅读理解能力。每个参与中心都被要求在 100 名连续 JIA 患者或 6 个月内连续看到的所有患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其家长发放 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫的阿尔法、量表间相关性、测试-重测信度和结构效度(收敛和区分效度)。共有 100 名 JIA 患者(2%全身性,56%少关节型,17% RF 阴性多关节炎型,25%其他类型)和 204 名健康儿童在儿科风湿病中心入组。JAMAR 各组成部分能够区分健康受试者和 JIA 患者,除了儿科风湿病生活质量(HRQoL)、心理社会健康(PsH)子量表、HRQoL 总分和与学校相关问题变量。所有 JAMAR 成分均表现出良好的心理计量学性能。总之,拉脱维亚语版的 JAMAR 是一种评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。