Alshaikh Eman A, Almedimigh Abdulaziz F, Alruwaili Abdulmajeed M, Almajnoni Abdullah H, Alhajiahmed Ali, Almalki Thamer S, Alfaraj Sukayna Z, Pines Jesse M
School of Medicine and Health Sciences, The George Washington University, Washington, DC, USA.
Department of Emergency Medicine, Imam Abdulrahman bin Faisal University, Dammam, Saudi Arabia.
J Cancer Educ. 2019 Aug;34(4):775-781. doi: 10.1007/s13187-018-1372-2.
When patients are diagnosed or concerned with the diagnosis of melanoma, they commonly use the Internet for information. We assessed the content of patient-focused websites about melanoma. We searched for "melanoma" in four search engines then assessed the first 30 websites in each search. Among included sites, we describe potentially useful content about melanoma: website quality, readability, popularity, and social media sharing. In 31 included websites, > 80% mentioned the definition and risk factors for melanoma, when to seek medical help, how to diagnose, and treatment options, and > 70% described preventive measures. However, website quality was variable: 61% of websites had disclosures, 54% were dated, 41% had a clear author, and 41% had references. Average readability ranged from 8th to 12th grade, which is above recommended reading levels for patient websites. Despite this variation and high reading levels, we identified many high-quality melanoma websites for patients.
当患者被诊断出患有黑色素瘤或担心黑色素瘤的诊断时,他们通常会通过互联网获取信息。我们评估了以患者为中心的黑色素瘤相关网站的内容。我们在四个搜索引擎中搜索了“黑色素瘤”,然后评估了每个搜索结果中的前30个网站。在纳入的网站中,我们描述了有关黑色素瘤的潜在有用内容:网站质量、可读性、受欢迎程度和社交媒体分享情况。在31个纳入的网站中,超过80%提到了黑色素瘤的定义和危险因素、何时寻求医疗帮助、如何诊断以及治疗选择,超过70%描述了预防措施。然而,网站质量参差不齐:61%的网站有披露信息,54%的网站有日期标注,41%的网站有明确的作者,41%的网站有参考文献。平均可读性从八年级到十二年级不等,高于患者网站推荐的阅读水平。尽管存在这种差异和较高的阅读水平,我们还是为患者找到了许多高质量的黑色素瘤网站。