De Groot Lauren, Harris Ilene, Regehr Glenn, Tekian Ara, Ingledew Paris-Ann
Undergraduate Medical Program, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
Department of Medical Education, College of Medicine, University of Illinois at Chicago, Chicago, IL, USA.
J Cancer Educ. 2019 Apr;34(2):223-228. doi: 10.1007/s13187-017-1290-8.
The Internet is increasingly a source of information for pancreatic cancer patients. This disease is usually diagnosed at an advanced stage; therefore, timely access to high-quality information is critical. Our purpose is to systematically evaluate the information available to pancreatic cancer patients on the internet. An internet search using the term "pancreatic cancer" was performed, with the meta-search engines "Dogpile", "Yippy" and "Google". The top 100 websites returned by the search engines were evaluated using a validated structured rating tool. Inter-rater reliability was evaluated using kappa statistics and results were analyzed using descriptive statistics. Amongst the 100 websites evaluated, etiology/risk factors and symptoms were the most accurately covered (70 and 67% of websites). Prevention, treatment and prognosis were the least accurate sections (55, 55 and 43% of websites). Prevention and prognosis were also the least likely to be covered with 63 and 51 websites covering these, respectively. Only 40% of websites identified an author. Twenty-two percent of websites were at a university reading level. The majority of online information is accurate but incomplete. Websites may lack information on prognosis. Many websites are outdated and lacked author information, and readability levels are inappropriate. This knowledge can inform the dialogue between healthcare providers and patients.
互联网日益成为胰腺癌患者获取信息的来源。这种疾病通常在晚期才被诊断出来；因此，及时获取高质量信息至关重要。我们的目的是系统地评估互联网上可供胰腺癌患者获取的信息。使用元搜索引擎“Dogpile”、“Yippy”和“谷歌”，以“胰腺癌”为关键词进行了互联网搜索。使用经过验证的结构化评级工具对搜索引擎返回的前100个网站进行了评估。使用kappa统计量评估评分者间的信度，并使用描述性统计分析结果。在评估的100个网站中，病因/风险因素和症状的涵盖最为准确（分别占网站的70%和67%）。预防、治疗和预后部分的准确性最低（分别占网站的55%、55%和43%）。预防和预后部分也是被涵盖可能性最小的，分别只有63个和51个网站涉及这些内容。只有40%的网站标明了作者。22%的网站处于大学阅读水平。大多数在线信息准确但不完整。网站可能缺乏关于预后的信息。许多网站过时且缺乏作者信息，可读性水平也不合适。这些信息可为医疗服务提供者与患者之间的对话提供参考。
