Kamat Pradip P, Bryan Leah N, McCracken Courtney E, Simon Harold K, Berkenbosch John W, Grunwell Jocelyn R
Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA.
Division of Critical Care Medicine, Children's Healthcare of Atlanta at Egleston, Atlanta, GA, USA.
Paediatr Anaesth. 2018 Jun;28(6):552-557. doi: 10.1111/pan.13387. Epub 2018 May 6.
Children with autism spectrum disorder are challenging to sedate because of communication, sensory, and behavioral challenges.
The aim of this survey was to determine how procedural sedation is provided to children with autism spectrum disorders and whether sedation programs have specialized protocols for procedural sedation of these children.
We surveyed physician Medical Directors of sedation programs who are members of the Society for Pediatric Sedation, asking about practice characteristics and resource utilization during procedural sedation of children with autism spectrum disorders.
Of 58 directors, 47 (81%) responded. Of the programs surveyed, 53% were either a large university medical center and 40% were a freestanding children's hospital. Only (12/47, 25.5%) of the programs used an individualized autism coping plan. To accomplish procedural sedation in this study cohort, 36% of the programs used additional nurses, whereas a child life specialist was used in 55% of the programs surveyed. Only 28% of the centers allotted additional time to accommodate children with autism spectrum disorders. Distraction methods were used in 80% whereas restrains were used in 45% programs for were used most commonly for i.v. catheter placement. Propofol was the preferred agent for 70% of programs for imaging, while propofol + fentanyl was used by 66% of programs for painful procedures. Although 57% of directors reported that their program staff was extremely comfortable providing procedural sedation for children with autism spectrum disorder, 79% of the directors wanted more education about behavioral management strategies for procedural sedation of these children.
Among the Society for Pediatric Sedation programs, significant institutional variation exists on the delivery of procedural sedation to children with autism spectrum disorders. A better understanding of resources required, standardization of behavioral management strategies and pharmacologic approaches, and protocol development may help optimize care to this vulnerable population.
由于沟通、感官和行为方面的挑战,为患有自闭症谱系障碍的儿童进行镇静具有挑战性。
本次调查的目的是确定如何为患有自闭症谱系障碍的儿童提供程序性镇静,以及镇静项目是否有针对这些儿童程序性镇静的专门方案。
我们对儿科镇静协会成员中的镇静项目医师医疗主任进行了调查,询问了在为患有自闭症谱系障碍的儿童进行程序性镇静期间的实践特点和资源利用情况。
58名主任中,47名(81%)做出了回应。在接受调查的项目中,53%是大型大学医学中心,40%是独立儿童医院。只有12/47(25.5%)的项目使用了个性化的自闭症应对计划。为了在本研究队列中完成程序性镇静,36%的项目使用了额外的护士,而在55%接受调查的项目中使用了儿童生活专家。只有28%的中心分配了额外时间来照顾患有自闭症谱系障碍的儿童。80%的项目使用了分散注意力的方法,而45%的项目使用了约束措施,最常用于静脉置管。70%的项目在成像时首选丙泊酚,而66%的项目在进行疼痛操作时使用丙泊酚+芬太尼。尽管57%的主任报告说他们的项目工作人员在为患有自闭症谱系障碍的儿童提供程序性镇静方面非常得心应手,但79%的主任希望获得更多关于这些儿童程序性镇静行为管理策略的教育。
在儿科镇静协会的项目中,在为患有自闭症谱系障碍的儿童提供程序性镇静方面存在显著的机构差异。更好地了解所需资源、行为管理策略和药物治疗方法的标准化以及方案制定可能有助于优化对这一弱势群体的护理。