Martyn-Nemeth Pamela, Duffecy Jennifer, Fritschi Cynthia, Quinn Laurie
The University of Illinois Chicago, USA.
Clin Nurs Res. 2019 Nov;28(8):947-967. doi: 10.1177/1054773818774702. Epub 2018 May 6.
Little is known regarding how hypoglycemia and associated fears influence day-to-day life among adults with type 1 diabetes (T1DM) who use contemporary diabetes management strategies. To address this gap, we performed an exploratory qualitative study with five focus groups of 30 people aged 20 to 57 years with T1DM. Sessions were audiotaped and transcribed, and then analyzed. Eight themes emerged: (a) hypoglycemic worry, (b) unpredictability and loss of control, (c) contending with life stress, (d) exercise benefits and challenges, (e) a changed relationship with food, (f) sleep fears, (g) a love/hate relationship with technology, and (h) coping strategies to make it better. Fear of hypoglycemia, diabetes management, and work demands confer a high degree of stress. Challenges surround food, exercise, and sleep. Technology is important but does not relieve fear of hypoglycemia. Developing strong coping skills and creating a safety net of support are necessary.
对于采用现代糖尿病管理策略的1型糖尿病(T1DM)成年患者,低血糖及相关恐惧如何影响其日常生活,目前所知甚少。为填补这一空白,我们开展了一项探索性定性研究,对5个焦点小组共30名年龄在20至57岁的T1DM患者进行了研究。会议进行了录音和转录,然后进行分析。出现了八个主题:(a)低血糖担忧,(b)不可预测性和失控感,(c)应对生活压力,(d)运动的益处和挑战,(e)与食物关系的改变,(f)睡眠恐惧,(g)对技术的爱恨交加,以及(h)改善状况的应对策略。对低血糖的恐惧、糖尿病管理和工作需求带来了高度压力。围绕食物、运动和睡眠存在诸多挑战。技术很重要,但并不能消除对低血糖的恐惧。培养强大的应对技能并建立支持保障网络很有必要。