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精子捐赠者监管与披露意愿:法国一项全国多中心研究的结果

Sperm donor regulation and disclosure intentions: Results from a nationwide multi-centre study in France.

作者信息

Kalampalikis N, Doumergue M, Zadeh S

机构信息

Laboratoire GRePS (EA 4163), Institut de Psychologie, Université Lyon 2, Bron, France.

出版信息

Reprod Biomed Soc Online. 2018 Mar 10;5:38-45. doi: 10.1016/j.rbms.2018.02.001. eCollection 2018 Apr.

DOI:10.1016/j.rbms.2018.02.001
PMID:29774274
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5952651/
Abstract

Gamete donation in Europe is not regulated by a common legal framework. Different laws regarding donor anonymity and remuneration exist in different countries. In France, gamete donation is characterized by a stable legal framework - the existing system of anonymous and non-remunerated donation remained unchanged following a period of public and parliamentary debate in 2011 - but little evidence is available concerning recipients' views and experiences of gamete donation. This article describes findings from a questionnaire completed individually by 714 heterosexual couple members undergoing a donor conception procedure at one of 20 national fertility centres in France. Participants were invited to report their attitudes towards the French legal framework, their perceptions of the anonymous donor, and their intentions to disclose donor conception to their child and to other people. The majority of respondents (93%) approved of the current legal framework. Participants indicated that they thought about the sperm donor in ways that emphasized his act of donation without describing him as a specific individual. A majority (71%) also stated that they intended to tell their child about their donor conception. Given that this is the largest nationwide study of French recipients of donor sperm, the findings make an important contribution to the research evidence currently available about prospective parents' perspectives in the increasingly uncommon context of donor anonymity in Europe.

摘要

在欧洲,配子捐赠不受统一法律框架的规范。不同国家对于捐赠者匿名和报酬有着不同的法律规定。在法国,配子捐赠具有稳定的法律框架——在经历了2011年公众和议会辩论阶段后,现有的匿名且无报酬的捐赠体系保持不变——但关于受赠者对配子捐赠的看法和经历,几乎没有相关证据。本文描述了一项问卷调查的结果,该问卷由在法国20家国家生育中心之一接受供体受孕程序的714对异性恋伴侣成员单独填写。参与者被邀请报告他们对法国法律框架的态度、对匿名捐赠者的看法,以及他们向孩子和其他人透露供体受孕情况的意愿。大多数受访者(93%)赞成现行法律框架。参与者表示,他们对精子捐赠者的思考方式强调了其捐赠行为,而没有将他描述为一个具体的个人。大多数人(71%)还表示,他们打算告诉孩子关于供体受孕的事情。鉴于这是法国最大规模的全国性供体精子受赠者研究,这些发现为目前现有的关于准父母在欧洲日益罕见的捐赠者匿名背景下观点的研究证据做出了重要贡献。

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1
Sperm donor regulation and disclosure intentions: Results from a nationwide multi-centre study in France.精子捐赠者监管与披露意愿:法国一项全国多中心研究的结果
Reprod Biomed Soc Online. 2018 Mar 10;5:38-45. doi: 10.1016/j.rbms.2018.02.001. eCollection 2018 Apr.
2
Attitudes and disclosure decisions of Finnish parents with children conceived using donor sperm.使用捐赠精子受孕的芬兰父母的态度和披露决策。
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Understanding parents' intention to disclose the donor conception to their child by application of the theory of planned behaviour.运用计划行为理论理解父母有意向向孩子披露供精受孕事实的意图。
Hum Reprod. 2021 Jan 25;36(2):395-404. doi: 10.1093/humrep/deaa299.
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It takes two to tango: information-sharing with offspring among heterosexual parents following identity-release sperm donation.探戈需两人共舞:身份公开的精子捐赠后异性父母与子女间的信息共享
Hum Reprod. 2016 Jan;31(1):125-32. doi: 10.1093/humrep/dev293. Epub 2015 Dec 4.
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The attitudes of IVF patients treated in the Czech Republic towards informing children born after gamete donation.在捷克接受体外受精治疗的患者对于告知通过配子捐赠出生的孩子相关情况的态度。
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Preference for anonymity in sperm donation for artificial insemination: an experience from low-resource settings in Nigeria.人工授精中精子捐赠时对匿名的偏好:来自尼日利亚资源匮乏地区的经验
Patient Prefer Adherence. 2018 Apr 6;12:499-504. doi: 10.2147/PPA.S152868. eCollection 2018.
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Sperm Donation and the Right to Privacy.精子捐赠与隐私权
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A Systematic Review of Qualitative Studies Investigating Motives and Experiences of Recipients of Anonymous Gamete Donation.一项关于调查匿名配子捐赠受赠者动机和经历的定性研究的系统评价。
Front Sociol. 2022 Feb 16;7:746847. doi: 10.3389/fsoc.2022.746847. eCollection 2022.
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Sperm donor conception and disclosure to children: a 10-year retrospective follow-up study of parental attitudes in one French center for the study and preservation of eggs and sperm (CECOS).精子捐赠受孕与向子女披露:一项对法国卵子和精子研究与保存中心(CECOS) 10 年来父母态度的回顾性研究
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Two decades after legislation on identifiable donors in Sweden: are recipient couples ready to be open about using gamete donation?在瑞典的可识别供体立法出台二十年后:接受者夫妇是否准备好公开使用配子捐赠?
Hum Reprod. 2011 Apr;26(4):853-60. doi: 10.1093/humrep/deq365. Epub 2011 Jan 5.

引用本文的文献

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Shifting to a model of donor conception that entails a communication agreement among the parents, donor, and offspring.转向一种涉及父母、供体和后代之间沟通协议的供体受孕模式。
BMC Med Ethics. 2022 Mar 4;23(1):18. doi: 10.1186/s12910-022-00756-1.
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Good practice recommendations for information provision for those involved in reproductive donation.为参与生殖捐赠者提供信息的良好实践建议。
Hum Reprod Open. 2022 Feb 16;2022(1):hoac001. doi: 10.1093/hropen/hoac001. eCollection 2022.

本文引用的文献

1
Sperm donor conception and disclosure to children: a 10-year retrospective follow-up study of parental attitudes in one French center for the study and preservation of eggs and sperm (CECOS).精子捐赠受孕与向子女披露:一项对法国卵子和精子研究与保存中心(CECOS) 10 年来父母态度的回顾性研究
Fertil Steril. 2017 Aug;108(2):247-253. doi: 10.1016/j.fertnstert.2017.06.001. Epub 2017 Jul 8.
2
Disclosure of donor conception in the era of non-anonymity: safeguarding and promoting the interests of donor-conceived individuals?非匿名时代供体受孕的披露:保护和促进供体受孕个体的利益?
Hum Reprod. 2016 Nov;31(11):2416-2420. doi: 10.1093/humrep/dew240. Epub 2016 Oct 3.
3
Disclosure of sperm donation: a comparison between solo mother and two-parent families with identifiable donors.精子捐赠的披露:单亲家庭与有可识别捐赠者的双亲家庭之比较。
Reprod Biomed Online. 2016 Nov;33(5):592-600. doi: 10.1016/j.rbmo.2016.08.004. Epub 2016 Aug 20.
4
The end of donor anonymity: how genetic testing is likely to drive anonymous gamete donation out of business.捐赠者匿名制的终结:基因检测如何可能使匿名配子捐赠不再可行。
Hum Reprod. 2016 Jun;31(6):1135-40. doi: 10.1093/humrep/dew065. Epub 2016 Apr 12.
5
Absence or presence? Complexities in the donor narratives of single mothers using sperm donation.存在还是缺失?单亲母亲使用精子捐赠的捐赠者叙述中的复杂性。
Hum Reprod. 2016 Jan;31(1):117-24. doi: 10.1093/humrep/dev275. Epub 2015 Nov 5.
6
Editorial.社论。
Facts Views Vis Obgyn. 2015;7(2):79-80.
7
Gamete donation, information sharing and the best interests of the child: an overview of the psychosocial evidence.配子捐赠、信息共享与儿童的最大利益:社会心理证据概述
Monash Bioeth Rev. 2015 Mar;33(1):45-63. doi: 10.1007/s40592-015-0018-y.
8
The limits of evidence: evidence based policy and the removal of gamete donor anonymity in the UK.证据的局限:循证政策与英国配子捐赠者匿名制度的废除
Monash Bioeth Rev. 2015 Mar;33(1):29-44. doi: 10.1007/s40592-015-0017-z.
9
Wayward Relations: Novel Searches of the Donor-Conceived for Genetic Kinship.复杂的关系:对通过捐赠受孕者进行基因亲属关系的新型探索
Med Anthropol. 2016;35(1):45-57. doi: 10.1080/01459740.2015.1012615. Epub 2015 Feb 4.
10
Open-Identity Sperm Donation: How Does Offering Donor-Identifying Information Relate to Donor-Conceived Offspring's Wishes and Needs?公开身份的精子捐赠:提供捐赠者身份信息与通过捐赠者受孕的后代的愿望和需求有何关联?
J Bioeth Inq. 2015 Sep;12(3):503-9. doi: 10.1007/s11673-014-9550-3. Epub 2014 Jul 5.