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证据的局限:循证政策与英国配子捐赠者匿名制度的废除

The limits of evidence: evidence based policy and the removal of gamete donor anonymity in the UK.

作者信息

Frith Lucy

机构信息

Department of Health Service Research, University of Liverpool, Block B, Waterhouse Building, Brownlow Street, Liverpool, L69 3GL, UK,

出版信息

Monash Bioeth Rev. 2015 Mar;33(1):29-44. doi: 10.1007/s40592-015-0017-z.

Abstract

This paper will critically examine the use of evidence in creating policy in the area of reproductive technologies. The use of evidence in health care and policy is not a new phenomenon. However, codified strategies for evidence appraisal in health care technology assessments and attempts to create evidence based policy initiatives suggest that the way evidence is used in practice and policy has changed. This paper will examine this trend by considering what is counted as 'good' evidence, difficulties in translating evidence into policy and practice and how evidence interacts with principles. To illustrate these points the removal of gamete donor anonymity in the UK in 2005 and the debates that preceded this change in the law will be examined. It will be argued that evidence will only ever take us so far and attention should also be paid to the underlying principles that guide policy. The paper will conclude with suggestions for how underlying principles can be more rigorously used in policy formation.

摘要

本文将批判性地审视证据在生殖技术领域政策制定中的应用。证据在医疗保健和政策中的使用并非新现象。然而,医疗技术评估中证据评估的编纂策略以及基于证据的政策倡议的尝试表明,证据在实践和政策中的使用方式已经发生了变化。本文将通过考虑什么被视为“良好”证据、将证据转化为政策和实践的困难以及证据如何与原则相互作用来审视这一趋势。为了说明这些观点,将考察2005年英国配子捐赠者匿名性的取消以及这一法律变化之前的辩论。有人认为,证据只能让我们走这么远,还应关注指导政策的基本原则。本文将以关于如何在政策形成中更严格地运用基本原则的建议作为结论。

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