Pollo Camila Fernandes, Meneguin Silmara, Miot Helio Amante
Enfermagem, Campus de Botucatu, Faculdade de Medicina, Universidade Estadual Paulista Julio de Mesquita Filho, Botucatu, SP, BR.
Departamento de Dermatologia e Radioterapia, Faculdade de Medicina, Universidade Paulista Julio de Mesquita Filho, Botucatu, SP, BR.
Clinics (Sao Paulo). 2018 May 21;73:e65. doi: 10.6061/clinics/2018/e65.
The aim of this study was to analyze scientific production concerning the validation and cultural adaptation of quality of life evaluation instruments for patients with melasma and to offer a critical reflection on these methods. A literature review was performed based on a search of the Web of Science, Bireme, PubMed, Elsevier Scopus, and Google Scholar databases. All published articles from indexed periodicals in these electronic databases up to December 2015 were included. Eight articles were identified, of which only one (12.5%) referred to the development and validation of a specific instrument for evaluation of the quality of life of melasma patients. An additional six articles (75%) referred to transcultural adjustment and validation of the same instrument in other languages, and another (12.5%) article reported the development of a generic instrument for evaluation of quality of life in patients with pigment disorders. This review revealed only one specific instrument developed and validated in different cultures. Despite being widely used, this instrument did not follow the classic construction steps for psychometric instruments, which paves the way for future studies to develop novel instruments.
本研究旨在分析有关黄褐斑患者生活质量评估工具的验证及文化适应性的科研成果，并对这些方法进行批判性反思。基于对科学网、拉丁美洲和加勒比地区健康科学文献数据库、美国国立医学图书馆生物医学文献数据库、爱思唯尔文摘与引文数据库以及谷歌学术数据库的检索，进行了文献综述。纳入了截至2015年12月这些电子数据库中索引期刊发表的所有文章。共识别出8篇文章，其中仅有1篇（12.5%）提及了一种用于评估黄褐斑患者生活质量的特定工具的开发与验证。另外6篇文章（75%）涉及该同一工具在其他语言中的跨文化调适与验证，还有1篇文章（12.5%）报告了一种用于评估色素沉着障碍患者生活质量的通用工具的开发情况。该综述仅揭示了一种在不同文化中开发并验证的特定工具。尽管该工具被广泛使用，但它并未遵循心理测量工具的经典构建步骤，这为未来开发新型工具的研究铺平了道路。
