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中国上海肝硬化患者的自我管理行为:一项横断面研究。

Self-Management Behaviors Among Patients With Liver Cirrhosis in Shanghai, China: A Cross-Sectional Study.

机构信息

Shanghai Public Health Clinical Center, Fudan University, Shanghai, China.

University of California, Los Angeles, USA.

出版信息

Clin Nurs Res. 2020 Sep;29(7):448-459. doi: 10.1177/1054773818777914. Epub 2018 May 28.

Abstract

Effective self-management of liver cirrhosis requires medication adherence and lifestyle modifications. The purpose of this study was to investigate the self-management behaviors of liver cirrhosis patients and how their knowledge of cirrhosis, psychological status, and self-efficacy contributes to self-management practices in Shanghai, China. Subjects were recruited from the hepatology units in an infectious hospital in Shanghai, China. Self-administered questionnaires were collected and medical charts were reviewed by the research staff. A total of 134 subjects were enrolled from November 2016 to March 2017. The results indicate that the self-management behaviors mean score was 2.51 out of 4 and that depression, severity of cirrhosis, and self-efficacy significantly affected self-management behaviors and explained 22.9% of the total variance. The findings also indicate that psychological stress, disease severity, and self-efficacy affected self-management behaviors in liver cirrhosis patients. Interventions focusing on decreasing depression and enhancing self-efficacy according to disease severity should improve self-management behaviors in this population.

摘要

有效的肝硬化自我管理需要药物依从性和生活方式的改变。本研究的目的是调查中国上海肝硬化患者的自我管理行为,以及他们对肝硬化的知识、心理状态和自我效能感如何促进自我管理实践。研究对象是从上海一家传染病医院的肝病科招募的。研究人员通过自填问卷和病历回顾的方式收集数据。2016 年 11 月至 2017 年 3 月共招募了 134 名受试者。结果表明,自我管理行为的平均得分为 4 分中的 2.51 分,抑郁、肝硬化严重程度和自我效能感显著影响自我管理行为,解释了总方差的 22.9%。研究结果还表明,心理压力、疾病严重程度和自我效能感影响肝硬化患者的自我管理行为。根据疾病严重程度,关注减轻抑郁和增强自我效能感的干预措施应该可以改善这一人群的自我管理行为。

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