Hastings Cent Rep. 2018 May;48(3):5-7. doi: 10.1002/hast.847.
May 21, 2018, marks the tenth anniversary of the signing into law of the Genetic Information Nondiscrimination Act. The Congressional deliberations for GINA were long and difficult. The original bill was introduced in 1995, and for many years, it did not look as if the bill would ever emerge from committee. Several of its provisions raised concerns for insurers, employers, and other stakeholders. After thirteen years, the controversial provisions were either deleted, revised, or clarified. At this ten-year mark, it is appropriate to take stock of GINA. In light of GINA's glacial legislative history, it is reasonable to start thinking about the necessity, wisdom, and feasibility of amending GINA or enacting new legislation to address unresolved or emerging issues of genetic discrimination and trends in genetics, genomics, precision medicine, and related technologies.
2018 年 5 月 21 日，是《遗传信息非歧视法案》签署成为法律十周年的日子。国会对 GINA 的审议过程漫长而艰难。该法案的原始法案于 1995 年提出，多年来，该法案似乎都无法从委员会中通过。其几项规定引起了保险公司、雇主和其他利益相关者的担忧。经过 13 年，有争议的条款要么被删除、修改或澄清。在这十周年之际，对 GINA 进行评估是恰当的。鉴于 GINA 立法历史的缓慢，人们有理由开始思考修改 GINA 或制定新立法的必要性、智慧和可行性，以解决遗传歧视以及遗传学、基因组学、精准医学和相关技术中未解决或新出现的问题和趋势。
