Timonet-Andreu Eva, Canca-Sanchez José Carlos, Sepulveda-Sanchez Juana, Ortiz-Tomé Celia, Rivas-Ruiz Francisco, Toribio-Toribio Juan Carlos, Mora-Banderas Ana, Morales-Asencio José Miguel
Cardiology Unit, Costa del Sol Public Health Agency, Marbella, Spain.
Nursing Unit, Costa del Sol Public Health Agency, Marbella, Spain.
J Adv Nurs. 2018 Oct;74(10):2312-2321. doi: 10.1111/jan.13727. Epub 2018 Jul 8.
The aim of this study is to profile the family caregivers of people living with heart failure, to determine the perceived and real time devoted to daily care and to identify the factors associated with caregivers' overestimation of time dedicated to care.
The time spent by family caregivers on daily care is related to overload, but there are differences between real and perceived time spent. The reason for this difference is unknown, as is its impact on the caregiver.
Multicentre, cross-sectional study.
This study forms part of a longitudinal, multicentre, ambispective cohort investigation. The study population was composed of 478 patient-family caregiver dyads and the data were collected over 2 years from 2014 - 2016.
The mean time perceived to be spent on daily care was 8.79 hr versus a real value of 4.41 hr. These values were positively correlated. A significant correlation was also found between the overestimation of hours spent and the age of the caregiver, the duration of the caregiving relationship and the number of people providing support and with the patient's level of dependence and self-care.
The overestimation of time dedicated to care seems to be related to patients' and caregivers' characteristics, such as functional status, caregiver burden, age and cohabitation. These patterns should be considered by nurses when carrying out assessment and care planning with these patients and their caregivers.
本研究旨在剖析心力衰竭患者的家庭照护者，确定其感知的和实际用于日常照护的时间，并识别与照护者对照护时间高估相关的因素。
家庭照护者用于日常照护的时间与负担过重有关，但实际花费时间和感知时间存在差异。这种差异的原因及其对照护者的影响尚不清楚。
多中心横断面研究。
本研究是一项纵向、多中心、双向队列调查的一部分。研究人群由478对患者-家庭照护者二元组组成，数据于2014年至2016年的2年时间内收集。
感知到的日常照护平均时间为8.79小时，而实际时间为4.41小时。这些数值呈正相关。在照护时间高估与照护者年龄、照护关系持续时间、提供支持的人数以及患者的依赖程度和自我照护水平之间也发现了显著相关性。
对照护时间的高估似乎与患者和照护者的特征有关，如功能状态、照护者负担、年龄和同居情况。护士在对这些患者及其照护者进行评估和护理规划时应考虑这些模式。
