Lee JuHee, Kim Sung Hae, Kim Yonji, Kim Yie Lin, Sohn Youngho
Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, Seoul, South Korea.
Graduate School, College of Nursing, Yonsei University, Seoul, South Korea.
Rehabil Nurs. 2019 Nov/Dec;44(6):338-348. doi: 10.1097/rnj.0000000000000158.
This study aimed to construct a structural equation model to predict the quality of life of caregivers of individuals with Parkinson's disease.
A cross-sectional survey using a structured questionnaire in South Korea.
A total of 208 subjects participated in this study from August 31 to November 26, 2015. The questionnaire included caregiving appraisal, social support, educational program needs, and the Parkinson's Disease Questionnaire-Carer.
Participants were either spouses (46.2%) or adult children (45.2%) of individuals with Parkinson's disease. The mean score obtained on the caregiver's quality of life was 40.94 ± 25.30. Social support, caregiving appraisal, and educational program needs were the predictors, explaining 67.0% of the variance in caregivers' quality of life.
Predicting the quality of life is useful for the development of support resources for caregivers of individuals with Parkinson's disease. Further studies exploring the multidimensional aspects of caregivers' quality of life are needed.
Rehabilitation nurses should identify caregivers at high risk in order to improve their quality of life. Nurses should assess education program needs and caregiving appraisal of caregivers of individuals with Parkinson's disease and develop a customized intervention program.
本研究旨在构建一个结构方程模型，以预测帕金森病患者照料者的生活质量。
在韩国采用结构化问卷进行横断面调查。
2015年8月31日至11月26日，共有208名受试者参与了本研究。问卷包括照料评估、社会支持、教育项目需求以及帕金森病照料者问卷。
参与者为帕金森病患者的配偶（46.2%）或成年子女（45.2%）。照料者生活质量的平均得分为40.94±25.30。社会支持、照料评估和教育项目需求是预测因素，解释了照料者生活质量变异的67.0%。
预测生活质量有助于为帕金森病患者照料者开发支持资源。需要进一步研究探索照料者生活质量的多维度方面。
康复护士应识别高危照料者，以提高他们的生活质量。护士应评估帕金森病患者照料者的教育项目需求和照料评估，并制定定制化的干预项目。
