Jain Swaranjali V, Murrell Dedee F
Department of Dermatology, St George Hospital, Gray Street, Kogarah NSW, Sydney, Australia.
Faculty of Medicine, University of New South Wales, High Street, Kensington, NSW, Australia.
Int J Womens Dermatol. 2018 Jan 8;4(1):49-53. doi: 10.1016/j.ijwd.2017.11.004. eCollection 2018 Mar.
Inherited and autoimmune blistering diseases are rare, chronic, and often severe disorders that have the potential to significantly affect patients' quality of life. The effective management of these conditions requires consideration of the physical, emotional, and social aspects of the disease. Self-esteem is integral to patients' ability to cope with their illness, participate in treatment, and function in society. This article discusses quality-of-life studies of patients with blistering diseases with a particular focus on self-esteem issues that patients may face.
遗传性和自身免疫性水疱病是罕见的、慢性的，且往往较为严重的疾病，有可能显著影响患者的生活质量。对这些病症的有效管理需要考虑疾病的身体、情感和社会方面。自尊对于患者应对疾病、参与治疗以及在社会中发挥作用的能力至关重要。本文讨论水疱病患者的生活质量研究，特别关注患者可能面临的自尊问题。
