a Department of Sociomedical Sciences , Columbia University , New York , USA.
b Center for the Psychosocial Study of Health and Illness , Columbia University , New York , USA.
Cult Health Sex. 2019 Apr;21(4):373-386. doi: 10.1080/13691058.2018.1470674. Epub 2018 Jun 8.
HIV-related 'conspiracy beliefs' include ideas about the genocidal origin of HIV and the nature and purpose of HIV-related medications. These ideas have been widely documented as affecting myriad health behaviours and outcomes, including birth control use and HIV testing. Most HIV-related research has quantitatively explored this phenomenon, and further qualitative research is necessary to better understand the complexity of these beliefs as articulated by those who endorse them. Moreover, public health in general has over-emphasised the role of the Tuskegee Syphilis Study in explaining mistrust, rather than focus on ongoing social inequalities. Twenty-seven semi-structured interviews were conducted with low-income Black and Latinx people living with HIV who were currently, or had been recently, disengaged from HIV medical care. Beliefs about the role and intentions of the government and pharmaceutical industry in the epidemic highlighted the racism and classism experienced by participants. Notably, however, HIV care providers were not perceived as part of the government-pharmaceutical collusion. Interventions should focus on fostering positive beliefs about HIV medication and building trust between HIV care providers and populations that have experienced ongoing social and economic exclusion. Replacing the phrase 'conspiracy beliefs' with more descriptive terms, such as HIV-related beliefs, could avoid discrediting people's lived experiences.
与 HIV 相关的“阴谋论”包括有关 HIV 的种族灭绝起源以及与 HIV 相关药物的性质和用途的观点。这些观点已被广泛记录下来，影响了无数的健康行为和结果，包括避孕措施的使用和 HIV 检测。大多数与 HIV 相关的研究都从定量角度探讨了这一现象，需要进一步的定性研究来更好地理解那些认同这些观点的人所表达的这些信念的复杂性。此外，一般的公共卫生过分强调了塔斯基吉梅毒研究在解释不信任方面的作用，而不是关注持续存在的社会不平等现象。对目前或最近已经脱离 HIV 医疗护理的低收入黑人及拉丁裔 HIV 感染者进行了 27 次半结构化访谈。参与者强调了他们在疫情中所经历的种族主义和阶级主义，突出了他们对政府和制药行业在疫情中的作用和意图的看法。值得注意的是，HIV 护理提供者并没有被视为政府-制药勾结的一部分。干预措施应侧重于培养对 HIV 药物的积极信念，并在 HIV 护理提供者和经历持续社会和经济排斥的人群之间建立信任。用更具描述性的术语（如与 HIV 相关的信念）代替“阴谋论”一词，可以避免诋毁人们的生活经历。
