Scholten Guda, Bourguignon Sofie, Delanote Anthony, Vermeulen Bieke, Van Boxem Geert, Schoenmakers Birgitte
Department of Public Health and Primary Care, University of Leuven, Kapucijnenvoer 33, block J, Box 7001, 3000, Leuven, Belgium.
BMC Med Ethics. 2018 Jun 11;19(1):58. doi: 10.1186/s12910-018-0305-2.
Due to the rapid changes in the medical world and the aging population, the need for advanced care planning grows. Despite efforts to make this topic discussed, only a minority of patients discusses the advance directive with their general practitioner (GP). This study aimed to map thresholds: What barriers are identified by GPs and patients in preparing and discussing an advance directive?
A cross section survey in patients and GP's was performed. Citizens were recruited by multimedia and by street interviews. GP's were recruited by mailing.
Most of the 502 citizens already heard of an advance directive but only 17 had declared one while 21 never want one. Eighty percent wants to take the initiative themselves but half of the participants wants the GP to be actively involved. Thirty percent finds the document too difficult to understand. The need to draw an advance directive grew with increasing age. Of the 117 GP's involved, 65% drafted five or less advance directives the past year. A lack of time, experience and a poor access to the correct administrative requirements were only a few of the barriers.
Preparing and drafting an advance directive is a time-consuming and difficult procedure. Patients and GP's have the right to be informed and instructed on how to prepare an advance directive.
由于医学领域的快速变化和人口老龄化,对预先护理计划的需求不断增加。尽管人们努力讨论这个话题,但只有少数患者与他们的全科医生(GP)讨论过预先医疗指示。本研究旨在梳理障碍因素:全科医生和患者在准备和讨论预先医疗指示时发现了哪些障碍?
对患者和全科医生进行了横断面调查。通过多媒体和街头访谈招募市民。通过邮寄招募全科医生。
502名市民中的大多数已经听说过预先医疗指示,但只有17人声明过一份,而21人从未想要过。80%的人希望自己主动采取行动,但一半的参与者希望全科医生积极参与。30%的人认为这份文件太难理解。制定预先医疗指示的需求随着年龄的增长而增加。在参与的117名全科医生中,65%在过去一年中起草了五份或更少的预先医疗指示。时间不足、经验不足以及难以获取正确的行政要求只是其中的一些障碍。
准备和起草预先医疗指示是一个耗时且困难的过程。患者和全科医生有权了解并得到关于如何准备预先医疗指示的指导。