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通过合作与创新思维克服培训相关挑战,将患者利益相关者纳入患者参与研究项目的数据收集工作

Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project.

作者信息

Page-Reeves Janet, Regino Lidia, McGrew Hannah Cole, Tellez Maria, Pedigo Blanca, Overby Amy, Cunningham Abigail, Tigert Susan, Burge Mark

机构信息

Office for Community Health, Department of Family and Community Medicine, University of New Mexico Health Sciences Center, Albuquerque, NM, USA.

Office for Community Health, University of New Mexico Health Sciences Center, Albuquerque, NM, USA.

出版信息

J Patient Exp. 2018 Jun;5(2):88-91. doi: 10.1177/2374373517729506. Epub 2017 Sep 21.

Abstract

Including patient stakeholders as active members of the research team is essential to a patient-engaged research design. To hire community-based research staff for a study comparing the effectiveness of diabetes self-management programs for Latinos, we had to provide phlebotomy training which was not allowed under the fiscal guidelines of our funders. By collaborating with partners at the Clinical and Translational Science Center, we were not only able to find a creative solution and provide phlebotomy training to our research staff but the process of creating the training also contributed to improved infrastructure for patient-engaged research at our institution.

摘要

将患者利益相关者纳入研究团队并使其成为积极成员,对于以患者为中心的研究设计至关重要。为了招募社区研究人员来开展一项比较针对拉丁裔的糖尿病自我管理项目有效性的研究,我们必须提供静脉穿刺抽血培训,但这在我们资助者的财务指导方针下是不允许的。通过与临床和转化科学中心的合作伙伴合作,我们不仅能够找到创造性的解决方案,为我们的研究人员提供静脉穿刺抽血培训,而且创建培训的过程也有助于改善我们机构中以患者为中心的研究基础设施。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fec6/6022949/f038c8006c72/10.1177_2374373517729506-fig1.jpg

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