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[北京协和医院姑息关怀志愿者陪伴经历的调查]

[Survey on the Accompanying Experience of Palliative Hospice Volunteers in Peking Union Medical College Hospital].

作者信息

Tao Xin, Ning Xiao-Hong

机构信息

Department of Health Care, PUMC Hospital,CAMS and PUMC,Beijing 100730,China.

Department of Geriatrics,PUMC Hospital,CAMS and PUMC,Beijing 100730,China.

出版信息

Zhongguo Yi Xue Ke Xue Yuan Xue Bao. 2018 Jun 28;40(3):395-400. doi: 10.3881/j.issn.1000-503X.2018.03.017.

Abstract

Objective To investigate the experience of accompanying dying patients among hospice and palliative care (HPC) volunteers. Methods By applying the methodologies of phenomenological research and participatory observation,the experiences,awareness,and expectations of accompanying dying patients of 10 volunteers in our center were investigated. Results The experiences of 10 volunteers in HPC could be summarized into three subjects:volunteer personal cognition,volunteer demand and family support,and volunteers' expectations of hospital and society. These could be further divided into 6 sub-themes regarding the personal cognition and feelings of the volunteers:unknown,hostile,suspicious,helpless,role positioning,and passing the message of illness. Three sub-themes associated with individual needs and family support were:self motivation,family ties,and family support. Five sub-themes concerning volunteers' expectations for hospitals and society were:confusion of concept,lack of palliative idea,reach-out service,humanistic care,and adoption of palliative concept. Conclusion sHPC team should widely promote the concept of HPC,seeking supports from individuals,families,and the whole society. A strong volunteer team with robust volunteer service mode and standardized admittance,training,and supervision systems are needed. In particular,strengthened supervision and training of HPC volunteers and standard volunteer system are conducive to the improvement of HPC services in hospitals.

摘要

目的 探讨临终关怀与姑息治疗(HPC)志愿者陪伴临终患者的经历。方法 运用现象学研究方法和参与观察法,对本中心10名志愿者陪伴临终患者的经历、认知及期望进行调查。结果 10名HPC志愿者的经历可归纳为三个主题:志愿者个人认知、志愿者需求与家庭支持、志愿者对医院和社会的期望。这些主题可进一步细分为6个关于志愿者个人认知和感受的子主题:未知、敌对、怀疑、无助、角色定位、传递病情信息。与个人需求和家庭支持相关的3个子主题为:自我激励、家庭关系、家庭支持。与志愿者对医院和社会期望相关的5个子主题为:概念混淆、缺乏姑息理念、延伸服务、人文关怀、接受姑息理念。结论 HPC团队应广泛推广HPC理念,寻求个人、家庭和全社会的支持。需要一支强大的志愿者队伍,具备完善的志愿服务模式以及规范的准入、培训和监督体系。特别是,加强对HPC志愿者的监督和培训以及规范志愿者制度,有利于提高医院的HPC服务水平。

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