School of Allied and Public Health, Australian Catholic University, Fitzroy, VIC, Australia.
CanChild Centre for Childhood Disability Research, Hamilton, ON, Canada.
Disabil Rehabil. 2019 Dec;41(25):3043-3051. doi: 10.1080/09638288.2018.1486466. Epub 2018 Jul 10.
Short-term physical activity programs may encourage adolescents with cerebral palsy to participate in physical activity but how to sustain their involvement is not well known. This qualitative study aimed to identify facilitators that successfully sustain physical activity participation by adolescents with cerebral palsy. Adolescents (12-18 years) with cerebral palsy [Gross Motor Function Classification System (GMFCS) levels I-V, without moderate-severe intellectual disability] who participated in regular physical activity were eligible, as well as one parent and an individual who facilitated their physical activity. Data were gathered using semi-structured interviews; verbatim transcripts were analysed using inductive thematic analysis within individuals ( = 15), triads ( = 5), and across participant groups (adolescents, parents and facilitators). Five triads participated (male adolescents, 13-16 years, GMFCS levels I-III). Seven themes emerged: getting started, wanting to succeed, a sense of belonging, the coach is important, endorsement to continue, endorsement to support and being passionate. The themes were synthesized into the Framework for Sustained Participation, which describes the interaction among themes. The Framework for Sustained Participation highlights strategies that may be useful for adolescents, parents, sports facilitators, clinicians and researchers to help ambulatory male adolescents with cerebral palsy continue to participate in physical activity.Implications for rehabilitationSustaining participation in physical activity has the potential to enhance long-term health benefits of young people with cerebral palsy.Key facilitators of sustained physical activity in adolescents with cerebral palsy included tailoring the activity, getting the right coach and the adolescents' desire for health and fitness.The Framework of Sustained Participation may assist clinicians and facilitators who work with young people with cerebral palsy to structure their support in ways that will successfully sustain the adolescents' participation in physical activity.
短期身体活动计划可能会鼓励脑瘫青少年参与身体活动，但如何维持他们的参与度还不得而知。本定性研究旨在确定成功维持脑瘫青少年身体活动参与度的促进因素。有资格参与本研究的脑瘫青少年（12-18 岁；Gross Motor Function Classification System [GMFCS] 水平 I-V，无中度至重度智力残疾），以及一名家长和一名帮助他们进行身体活动的人员。使用半结构化访谈收集数据；使用个体内（ = 15）、三人组（ = 5）和跨参与者群体（青少年、家长和促进者）的归纳主题分析对逐字记录进行分析。共有 5 个三人组参与（男性青少年，13-16 岁，GMFCS 水平 I-III）。出现了 7 个主题：开始、想要成功、归属感、教练很重要、继续支持、支持和热情。这些主题被综合为持续参与框架，描述了主题之间的相互作用。持续参与框架突出了可能对青少年、家长、运动促进者、临床医生和研究人员有用的策略，以帮助脑瘫青少年继续参与身体活动。对康复的影响维持身体活动的参与度有可能增强脑瘫青少年的长期健康益处。脑瘫青少年持续身体活动的主要促进因素包括调整活动、找到合适的教练以及青少年对健康和健身的渴望。持续参与框架可以帮助与脑瘫青少年合作的临床医生和促进者以成功维持青少年身体活动参与度的方式来组织他们的支持。
