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针对精神病患者照料者的数字技术:系统评价

Digital Technology for Caregivers of People With Psychosis: Systematic Review.

作者信息

Onwumere Juliana, Amaral Filipa, Valmaggia Lucia R

机构信息

Institute of Psychology, Psychiatry and Neuroscience, Department of Psychology, King's College, London, London, United Kingdom.

Bethlem Royal Hospital, South London and Maudsley NHS Foundation Trust, London, United Kingdom.

出版信息

JMIR Ment Health. 2018 Sep 5;5(3):e55. doi: 10.2196/mental.9857.

Abstract

BACKGROUND

Psychotic disorders are severe mental health conditions that adversely affect the quality of life and life expectancy. Schizophrenia, the most common and severe form of psychosis affects 21 million people globally. Informal caregivers (families) are known to play an important role in facilitating patient recovery outcomes, although their own health and well-being could be adversely affected by the illness. The application of novel digital interventions in mental health care for patient groups is rapidly expanding; interestingly, however, far less is known about their role with family caregivers.

OBJECTIVE

This study aimed to systematically identify the application of digital interventions that focus on informal caregivers of people with psychosis and describe their outcomes.

METHODS

We completed a search for relevant papers in four electronic databases (EMBASE, MEDLINE, PsycINFO, and Web of Science). The search also included the Cochrane database and manual search of reference lists of relevant papers. The search was undertaken in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting guidelines.

RESULTS

The search identified 9 studies derived from 8 unique datasets. Most studies were assessments of feasibility and were undertaken in the United States. Interventions were predominately Web-based, with a focus on improving the caregivers' knowledge and understanding about psychosis.

CONCLUSIONS

This study offers preliminary support for the feasibility and acceptability of digital interventions for psychosis in informal caregiver populations. However, the findings underpin a clear need for greater development in the range of caregiver-focused digital approaches on offer and robust evaluation of their outcomes. The use of digital approaches with caregiver populations seemingly lags someway behind the significant developments observed in patient groups.

摘要

背景

精神障碍是严重的心理健康状况,会对生活质量和预期寿命产生不利影响。精神分裂症是最常见、最严重的精神病形式,全球有2100万人受其影响。虽然非正式照护者(家人)自身的健康和幸福可能会受到疾病的不利影响,但他们在促进患者康复方面发挥着重要作用。新型数字干预措施在精神卫生保健中对患者群体的应用正在迅速扩大;然而,有趣的是,对于它们在家庭照护者中的作用却知之甚少。

目的

本研究旨在系统地确定针对精神病患者非正式照护者的数字干预措施的应用情况,并描述其效果。

方法

我们在四个电子数据库(EMBASE、MEDLINE、PsycINFO和Web of Science)中搜索了相关论文。搜索还包括Cochrane数据库,并对相关论文的参考文献列表进行了手工搜索。搜索是按照系统评价和Meta分析的首选报告项目报告指南进行的。

结果

搜索确定了9项来自8个独特数据集的研究。大多数研究是可行性评估,且在美国进行。干预措施主要基于网络,重点是提高照护者对精神病的认识和理解。

结论

本研究为数字干预措施在非正式照护者群体中治疗精神病的可行性和可接受性提供了初步支持。然而,研究结果明确表明,需要大力发展更多以照护者为重点的数字方法,并对其效果进行有力评估。在照护者群体中使用数字方法似乎在某种程度上落后于在患者群体中所观察到的重大进展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/6231782/df09f73eb2cb/mental_v5i3e55_fig1.jpg

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