de Boer Marjolein, Zeiler Kristin, Slatman Jenny
Faculty of Medicine, Institute of Health and Society, University of Oslo, Blindern, PO Box 1089, 0318, Oslo, Norway.
Department of Thematic Studies, Linkoping University, Hus Temahuset, rum A:415, Campus Valla, Linköping, Sweden.
Med Health Care Philos. 2019 Jun;22(2):253-265. doi: 10.1007/s11019-018-9866-6.
By drawing on Jean-Luc Nancy's philosophy of ontological relationality, this article explores what it means to be a 'we' in breast cancer. What are the characteristics-the extent and diversity-of couples' relationally lived experiences of bodily changes in breast cancer? Through analyzing duo interviews with diagnosed women and their partners, four ways of sharing an embodied life are identified. (1) While 'being different together', partners have different, albeit connected kinds of experiences of breast cancer. (2) While 'being there for you', partners take care of each other in mutually dependent ways. (3) While 'being reconnected to you', partners (re-)relate to each other through intimacy and sexuality. (4) While 'being like you', partners synchronize their embodied daily lives to one another, sometimes up to the point that the self cannot be distinguished from the other anymore. These ways reveal that being a 'we' involves complex affective, bodily encounters in which the many fault lines that both separate partners into individual selves and join them together as a unity are continuously reshaped and negotiated. Being a 'we' may be understood as something we have to do. Therefore, in being true to the legacy of Nancy, we argue at the end of this article for a sensible praxis of sharing a life and body, particularly in breast cancer.
通过借鉴让-吕克·南希的本体关系哲学,本文探讨了在乳腺癌中成为一个“我们”意味着什么。夫妻在乳腺癌中身体变化的关系性生活经历的特征——程度和多样性是什么?通过分析对确诊女性及其伴侣的双人访谈,确定了四种共享身体生活的方式。(1)在“一起存在差异”时,伴侣们对乳腺癌有着不同但相互关联的经历。(2)在“为你守候”时,伴侣们以相互依赖的方式照顾彼此。(3)在“与你重新相连”时,伴侣们通过亲密关系和性行为相互(重新)建立联系。(4)在“与你相似”时,伴侣们使他们的身体化日常生活相互同步,有时甚至到了自我无法再与对方区分开来的程度。这些方式表明,成为一个“我们”涉及复杂的情感、身体相遇,在其中,将伴侣区分为个体自我并将他们作为一个整体连接在一起的许多断层线不断被重塑和协商。成为一个“我们”可以被理解为我们必须去做的事情。因此,为了忠实于南希的遗产,我们在本文结尾主张一种明智的实践,即共享生活和身体,尤其是在乳腺癌方面。