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2
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Canadian family members' experiences with guilt, judgment and secrecy during medical assistance in dying: a qualitative descriptive study.加拿大家庭成员在医疗协助死亡过程中产生内疚、遭受评判及经历保密情况的体验:一项质性描述性研究
CMAJ Open. 2023 Aug 22;11(4):E782-E789. doi: 10.9778/cmajo.20220140. Print 2023 Jul-Aug.
2
Unacknowledged Pain and Disenfranchised Grief: A Narrative Analysis of Physical and Emotional Pain in Complex MAiD Bereavement Stories.未被承认的痛苦与被剥夺的悲伤:对复杂的医疗协助死亡丧亲故事中身体和情感痛苦的叙事分析
Can J Pain. 2023 Aug 15;7(2):2231046. doi: 10.1080/24740527.2023.2231046. eCollection 2023.
3
Intra-Family End-Of-Life Conflict: Findings of a Research Investigation to Identify Its Incidence, Cause, and Impact.家庭内部临终冲突:一项旨在确定其发生率、原因及影响的研究调查结果
Omega (Westport). 2025 May;91(1):197-211. doi: 10.1177/00302228221133504. Epub 2022 Oct 10.
4
Grief and bereavement of family and friends around medical assistance in dying: scoping review.关于协助死亡的医疗照护,家属和朋友的悲伤和丧亲之痛:范围综述。
BMJ Support Palliat Care. 2023 Dec;13(4):414-428. doi: 10.1136/spcare-2022-003715. Epub 2022 Sep 13.
5
Introducing Medical Assistance in Dying in Canada: Lessons on Pragmatic Ethics and the Implementation of a Morally Contested Practice.引入加拿大的协助死亡:实用伦理和有争议实践实施的经验教训。
HEC Forum. 2022 Dec;34(4):307-319. doi: 10.1007/s10730-022-09495-7. Epub 2022 Sep 2.
6
Lessons learned about MAiD from a Catholic healthcare perspective.从天主教医疗保健角度了解 MAiD。
Healthc Manage Forum. 2023 May;36(3):154-161. doi: 10.1177/08404704221109760. Epub 2022 Jul 11.
7
Valid measurement of DSM-5 persistent complex bereavement disorder and DSM-5-TR and ICD-11 prolonged grief disorder: The Traumatic Grief Inventory-Self Report Plus (TGI-SR+).DSM-5 持续性复杂丧亲障碍和 DSM-5-TR 及 ICD-11 延长哀伤障碍的有效测量:创伤后悲伤量表-自我报告加项(TGI-SR+)。
Compr Psychiatry. 2022 Jan;112:152281. doi: 10.1016/j.comppsych.2021.152281. Epub 2021 Oct 21.
8
A Race to the End: Family Caregivers' Experience of Medical Assistance in Dying (MAiD)-a Qualitative Study.奔向终点:在协助死亡(MAiD)中,家庭护理人员的体验——一项定性研究。
J Gen Intern Med. 2022 Mar;37(4):809-815. doi: 10.1007/s11606-021-07012-z. Epub 2021 Jul 21.
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"I Am Okay With It, But I Am Not Going to Do It": The Exogenous Factors Influencing Non-Participation in Medical Assistance in Dying.“我可以接受,但我不会这样做”:影响拒绝参与医疗辅助死亡的外生因素。
Qual Health Res. 2021 Oct;31(12):2274-2289. doi: 10.1177/10497323211027130. Epub 2021 Jul 8.
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Forced and chosen transfers for medical assistance in dying (MAiD) before and during the COVID 19 pandemic: A mixed methods study.在 COVID-19 大流行前后,因医疗协助自杀(MAiD)而进行的强制和自愿转移:一项混合方法研究。
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绘制 MAiD 分歧图:对加拿大 MAiD 丧亲之痛复杂化因素的定性分析。

Mapping MAiD Discordance: A Qualitative Analysis of the Factors Complicating MAiD Bereavement in Canada.

机构信息

Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.

Centre for Addiction and Mental Health (CAMH), Toronto, ON, Canada.

出版信息

Qual Health Res. 2024 Feb;34(3):195-204. doi: 10.1177/10497323231208540. Epub 2023 Nov 16.

DOI:10.1177/10497323231208540
PMID:37972933
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10768327/
Abstract

Medical assistance in dying (MAiD) is an evolving practice in Canada, with requests and outcomes increasing each year, and yet controversy is present-with a vast spectrum of ethical positions on its permissibility. International research indicates that family members who experience disagreement over their loved one's decision to have MAiD are less likely to be actively involved in supporting patients through the practical aspects of the dying process. Family members with passive involvement in the assisted dying process may also experience more significant moral dilemmas and challenging grief experiences than those who supported the decision. Given these previous findings, we designed this study to explore the factors complicating family members' experiences with MAiD in Canada and to understand how these complicating factors impact family members' bereavement in the months and years following MAiD. We conducted narrative interviews with 12 MAiD-bereaved family members who experienced disagreements, family conflicts, or differences in understanding about MAiD. Documenting and analyzing participants' experiences through storytelling allowed us to appreciate the complexity of family members' experiences and understand their values. The analysis generated five factors that can complicate the MAiD process and bereavement for family members: family discordance, internal conflict, legislative and eligibility concerns, logistical challenges, and managing disclosure and negative reactions. To our knowledge, this is the first Canadian study that explores how family discordance can impact bereavement following MAiD. Future bereavement services and resources should consider how these complicating factors may impact bereavement and ensure that Canadians with diverse MAiD experiences can access appropriate support.

摘要

医疗辅助死亡(MAiD)在加拿大是一种不断发展的实践,每年的请求和结果都在增加,但争议依然存在——对于其是否允许存在着广泛的伦理立场。国际研究表明,对于亲人决定接受 MAiD 存在分歧的家庭成员,他们不太可能积极参与支持患者度过临终过程的实际方面。在协助死亡过程中被动参与的家庭成员可能比那些支持该决定的家庭成员经历更多的道德困境和更具挑战性的悲伤体验。鉴于这些先前的发现,我们设计了这项研究,以探讨使家庭成员在加拿大经历 MAiD 复杂化的因素,并了解这些复杂因素如何影响 MAiD 后几个月和几年中家庭成员的丧亲之痛。我们对 12 名 MAiD 丧亲的家庭成员进行了叙事采访,这些家庭成员经历了分歧、家庭冲突或对 MAiD 的理解差异。通过讲故事记录和分析参与者的经历,使我们能够理解家庭成员经历的复杂性,并了解他们的价值观。分析产生了五个可能使家庭成员 MAiD 过程和丧亲复杂化的因素:家庭不和、内部冲突、立法和资格问题、后勤挑战以及管理披露和负面反应。据我们所知,这是加拿大第一项探讨家庭不和如何影响 MAiD 后丧亲之痛的研究。未来的丧亲服务和资源应考虑这些复杂因素如何影响丧亲之痛,并确保具有不同 MAiD 经历的加拿大人能够获得适当的支持。