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年龄相关性黄斑变性对生活质量的影响及其与人口统计学数据的关联:挪威人群中NEI VFQ - 25问卷的结果

The Impact of Age-Related Macular Degeneration on Quality of Life and Its Association With Demographic Data: Results From the NEI VFQ-25 Questionnaire in a Norwegian Population.

作者信息

Schippert Ana Carla, Jelin Elma, Moe Morten C, Heiberg Turid, Grov Ellen Karine

机构信息

Oslo Metropolitan University, Norway.

Akershus University Hospital, Oslo, Norway.

出版信息

Gerontol Geriatr Med. 2018 Sep 20;4:2333721418801601. doi: 10.1177/2333721418801601. eCollection 2018 Jan-Dec.

Abstract

To describe vision-related quality of life (VRQoL) in a Norwegian population of patients with newly diagnosed neovascular age-related macular degeneration (nAMD), and to evaluate the association with demographic data of age, gender, and civil status (married, cohabitants/unmarried, not cohabitants). The Norwegian version of the National Eye Institute Visual Functioning Questionnaire-25 (NEI VFQ-25) questionnaire was administered to 145 patients recently diagnosed with nAMD. We used descriptive statistics and bivariate analysis to determine the distribution of demographic parameters and a possible association between demographic parameters and NEI VFQ-25 scores. Spearman correlation was employed to analyze the NEI VFQ-25 items and subscales scores. Mean () VFQ-25 total score was 78.5 (14.7). The scores per subscales varied from 64.7 to 89.7. No significant difference was revealed between demographic parameters and the NEI VFQ-25 items, except for one item (being with others) when comparing paired and nonpaired participants. In a Norwegian population with newly diagnosed nAMD, VRQoL is reported at a high baseline level. This is an important information for the health care personnel when discussing expectations during treatment with the patient. Age, gender, and civil status did not affect VRQoL.

摘要

描述挪威新诊断的新生血管性年龄相关性黄斑变性(nAMD)患者群体中与视力相关的生活质量(VRQoL),并评估其与年龄、性别和婚姻状况(已婚、同居/未婚、非同居)等人口统计学数据的关联。对145例最近诊断为nAMD的患者进行了挪威版的美国国立眼科研究所视觉功能问卷-25(NEI VFQ-25)问卷调查。我们使用描述性统计和双变量分析来确定人口统计学参数的分布以及人口统计学参数与NEI VFQ-25评分之间的可能关联。采用Spearman相关性分析NEI VFQ-25各项目和子量表得分。VFQ-25总分的平均值()为78.5(14.7)。各子量表得分从64.7到89.7不等。在比较配对和非配对参与者时,除了一个项目(与他人在一起)外,人口统计学参数与NEI VFQ-25各项目之间未发现显著差异。在挪威新诊断为nAMD的人群中,VRQoL报告处于较高的基线水平。这对于医护人员在与患者讨论治疗期望时是重要信息。年龄、性别和婚姻状况不影响VRQoL。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2514/6149028/4a30f31d9892/10.1177_2333721418801601-fig1.jpg

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