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在基于技术的干预研究中招募和留住亚裔美国乳腺癌幸存者所面临的问题。

Issues in Recruiting and Retaining Asian American Breast Cancer Survivors in a Technology-Based Intervention Study.

机构信息

Author Affiliation: School of Nursing, Duke University, Durham, North Carolina (Drs Im, Kim, and W. Chee; Mss Xu, Lee, Hamajima, Inohara, and Chang); and North Carolina State University, Raleigh (Ms E. Chee).

出版信息

Cancer Nurs. 2020 Jan/Feb;43(1):E22-E29. doi: 10.1097/NCC.0000000000000657.

DOI:10.1097/NCC.0000000000000657
PMID:30346330
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6475488/
Abstract

BACKGROUND

Difficulties in recruiting and retaining Asian Americans in traditional research have been well documented. Despite an increasing number of technology-based cancer studies among racial/ethnic minorities, little is still known about potential issues in recruiting and retaining racial/ethnic minority cancer survivors for technology-based intervention research.

OBJECTIVE

This discussion article aims to examine issues in recruiting and retaining a group of racial/ethnic minorities-Asian American breast cancer survivors-for a technology-based intervention study.

METHODS

The parent study is an ongoing large-scale, national-scope, technology-based intervention study among a target number of 330 Asian American breast cancer survivors. During the recruitment and retention process, research diaries were written by research team members, and the written records of weekly research team meetings were kept. The written records were analyzed using a content analysis. Then, the themes were used to support the discussion points made in the article.

RESULTS

There existed subethnic differences in research participation; it was easier to recruit Chinese participants compared with other subethnic groups. The use of culturally matched research team members and multiple languages was essential. Gatekeepers were also elemental for recruitment and retention. Various motivation strategies were needed to retain the participants. Each subethnic group used different communication apps. Finally, trust building was essential to retain the participants in the intervention.

CONCLUSIONS

Researchers need to consider these practical issues in future technology-based intervention research.

IMPLICATIONS FOR PRACTICE

These issues need to be considered in future program/intervention development and implementation among racial/ethnic minority cancer survivors.

摘要

背景

在传统研究中招募和留住亚裔美国人存在困难,这一点已经得到了充分的证明。尽管少数族裔中基于技术的癌症研究越来越多,但对于招募和留住基于技术的干预研究中的少数族裔癌症幸存者所涉及的潜在问题,我们知之甚少。

目的

本文旨在探讨在招募和留住一组少数族裔——亚裔美国乳腺癌幸存者,以参与一项基于技术的干预研究时所涉及的问题。

方法

该研究的母项研究是一项正在进行的大型、全国性的基于技术的干预研究,目标人群为 330 名亚裔美国乳腺癌幸存者。在招募和保留过程中,研究团队成员撰写了研究日记,并记录了每周研究团队会议的书面记录。使用内容分析法对书面记录进行分析。然后,使用主题来支持文章中的讨论要点。

结果

研究参与存在亚种族差异;与其他亚种族群体相比,招募中国参与者更容易。使用文化匹配的研究团队成员和多种语言至关重要。招募和保留的关键是把关人。需要采用各种激励策略来留住参与者。每个亚种族群体都使用不同的通讯应用程序。最后,建立信任对于留住干预研究中的参与者至关重要。

结论

研究人员在未来的基于技术的干预研究中需要考虑这些实际问题。

实践意义

这些问题需要在未来针对少数族裔癌症幸存者的方案/干预措施的制定和实施中加以考虑。

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