Faculty of Health Sciences, Department of Caring and Ethics, University of Stavanger, Stavanger, Norway.
Department of Haematology and Oncology, Stavanger University Hospital, Stavanger, Norway.
J Clin Nurs. 2021 Jun;30(11-12):1653-1664. doi: 10.1111/jocn.15719. Epub 2021 Mar 8.
To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory.
Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontinence, bowel changes and erection problems influencing sex life and manhood. Cancer pathways are designed to give patients and their relatives a predictable and as stress-free as possible treatment trajectory and minimise waiting time.
Qualitative, explorative research design.
Focus groups with 16 prostate cancer survivors after having participated in an educational programme. The COREQ checklist was followed to ensure rigour in the study.
The main theme, 'Help me stay in control', and three subthemes, 'To be met with interest and support, enough knowledge to understand what is happening and a plan to build the new life on', emerged from qualitative analysis and highlighted the participants' need for information and support, specially scheduled at critical times in the treatment trajectory: the diagnostic phase, the treatment phase and the life after treatment. They also highlighted the need for empathy and interest from healthcare professionals and highlighted the need for arenas to discuss vulnerable topics. Contact with peers was perceived as supportive and encouraging.
Healthcare professionals must support prostate cancer survivors with empathy, interest and information tailored to their needs in three different phases. Continuity in information flow may increase trust and satisfaction among the prostate cancer survivors.
PCa patients' need for information varied at critical times in their treatment trajectory. HCP should meet them with empathy and interest to be able to tailor their need for information and support.
探索和分析前列腺癌幸存者在癌症治疗过程中对所接受信息的体验和批判性思考。
前列腺癌是全球男性最常见的癌症之一。治疗会导致尿失禁、肠道变化和勃起问题等副作用，影响性生活和男子气概。癌症路径旨在为患者及其亲属提供可预测且尽可能无压力的治疗轨迹，并最大限度地减少等待时间。
定性、探索性研究设计。
对 16 名参加教育计划后的前列腺癌幸存者进行焦点小组讨论。遵循 COREQ 清单以确保研究的严谨性。
主要主题“帮助我保持控制”和三个子主题“得到兴趣和支持、足够的知识以了解正在发生的事情以及建立新生活的计划”从定性分析中浮现出来，强调了参与者对信息和支持的需求，特别是在治疗轨迹的关键时期：诊断阶段、治疗阶段和治疗后生活。它们还强调了医疗保健专业人员需要同理心和兴趣，并强调了需要讨论脆弱话题的场所。与同龄人接触被认为是支持和鼓励的。
医疗保健专业人员必须以同理心、兴趣和量身定制的信息支持前列腺癌幸存者，满足他们在三个不同阶段的需求。信息流动的连续性可能会增加前列腺癌幸存者的信任和满意度。
PCa 患者在治疗轨迹的关键时期对信息的需求各不相同。HCP 应该以同理心和兴趣来满足他们，以便能够根据他们的信息和支持需求进行调整。
