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照顾者根据被照顾者健康状况的体验:一项针对阿尔茨海默病和相关痴呆症与其他慢性疾病的照顾者的研究。

Experiences of caregivers by care recipient's health condition: A study of caregivers for Alzheimer's disease and related dementias versus other chronic conditions.

机构信息

University of South Carolina, Columbia, SC, USA.

University of South Carolina, Columbia, SC, USA.

出版信息

Geriatr Nurs. 2019 Mar-Apr;40(2):181-184. doi: 10.1016/j.gerinurse.2018.09.012. Epub 2018 Oct 24.

Abstract

This study described experiences of caregivers of persons with Alzheimer's disease and other dementias (ADRD) and caregivers of persons with other chronic conditions on self-reported health, type of assistance they provide, perceptions of how caregiving interferes with their lives, and perceived level of support. A secondary analysis was conducted of the 2013 Porter Novelli SummerStyles survey data. Of the 4033 respondents, 650 adults self-identified as caregivers with 11.6% caring for people with ADRD. Over half of all caregivers reported that caregiving interfered with their lives to some extent. The greater the perceived support caregivers reported, the less they thought that caregiving interfered with their lives (p < .001). No significant differences were found between ADRD and non-ADRD caregivers regarding general health, types of assistance they provided, and perceived level of support. These findings have the potential to inform future research and practice in the development of supportive services for caregivers.

摘要

本研究描述了阿尔茨海默病和其他痴呆症(ADRD)患者的照顾者以及其他慢性疾病患者的照顾者的体验,包括他们自我报告的健康状况、提供的帮助类型、对照顾如何干扰他们生活的看法,以及他们感知到的支持程度。对 2013 年 Porter Novelli SummerStyles 调查数据进行了二次分析。在 4033 名受访者中,有 650 名成年人自称为照顾者,其中 11.6%照顾患有 ADRD 的人。超过一半的照顾者报告说,照顾在某种程度上影响了他们的生活。照顾者报告的支持越多,他们认为照顾对生活的干扰就越小(p<0.001)。在一般健康状况、提供的帮助类型和感知到的支持程度方面,ADRD 照顾者和非 ADRD 照顾者之间没有发现显著差异。这些发现有可能为未来关于照顾者支持服务的研究和实践提供信息。

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