通过糖尿病社交媒体社区提供同伴支持。
Peer Support Through a Diabetes Social Media Community.
作者信息
Gavrila Valerie, Garrity Ashley, Hirschfeld Emily, Edwards Breann, Lee Joyce M
机构信息
1 Child Health Evaluation and Research Center, University of Michigan, Ann Arbor, MI, USA.
2 Pediatric Endocrinology, University of Michigan, Ann Arbor, MI, USA.
出版信息
J Diabetes Sci Technol. 2019 May;13(3):493-497. doi: 10.1177/1932296818818828. Epub 2019 Jan 2.
Abstract
BACKGROUND
Caregivers and individuals living with type 1 diabetes (T1D) who are members of CGM in the Cloud, a Facebook group associated with the Nightscout Project, were interviewed to assess how the online community impacted peer support.
METHODS
Semistructured qualitative interviews were conducted with caregivers and patients who are part of CGM in the Cloud Facebook group. Interview transcripts were analyzed to identify various themes related to peer support in the online group.
RESULTS
Members of the CGM in the Cloud Facebook group identified peer support through giving and receiving technical, emotional, and medical support, as well as giving back to the larger community by paying it forward. Peer support also extended beyond the online forum, connecting people in person, whether they were local or across the country.
CONCLUSIONS
An online community can provide many avenues for peer support through emotional and technical support, as well as serve as a tool of empowerment. The community as a whole also had a spirit of altruism that bolstered confidence in others as well as those who paid it forward.
摘要
背景
对“云端持续葡萄糖监测（CGM）”（一个与夜鹰计划相关的脸书群组）的成员——1型糖尿病（T1D）患者的照料者及患者本人进行访谈，以评估在线社区如何影响同伴支持。
方法
对“云端CGM”脸书群组中的照料者和患者进行半结构化定性访谈。对访谈记录进行分析，以确定与在线群组中同伴支持相关的各种主题。
结果
“云端CGM”脸书群组的成员通过给予和接受技术、情感及医疗支持，以及通过传递爱心回馈更大的社区来确定同伴支持。同伴支持还延伸到在线论坛之外，使人们无论在当地还是在全国各地都能面对面交流。
结论
一个在线社区可以通过情感和技术支持提供许多同伴支持的途径，同时还可作为一种赋权工具。整个社区还具有利他主义精神，增强了对他人以及传递爱心者的信心。
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