Årsand Eirik, Bradway Meghan, Gabarron Elia
1 Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway.
2 Department of Clinical Medicine, Faculty of Health Sciences, UiT The Arctic University of Norway, Tromsø, Norway.
J Diabetes Sci Technol. 2019 Mar;13(2):198-205. doi: 10.1177/1932296818821649. Epub 2019 Jan 13.
Use of social media is increasing rapidly, also in health care and diabetes. However, patients, health care personnel, and patient organizations discuss diabetes on social media very differently. This has led to a lack of common ground when these stakeholders communicate about diabetes and a gap in understanding one another's point of view. Social media have a potential for improved communication if each stakeholder group knows about, acknowledges, and accepts one another's perspective.
We extracted and analyzed posts from three Norwegian Facebook groups representing patients, patients' organization, and health care personnel. Qualitative content analysis was done to find the distribution of main categories, followed by a thematic analysis of subcategories that were posted and discussed.
The patient organization's posts are the most equally distributed over the four main identified categories: scientific content, health care services, self-management, and diabetes awareness. The closed patient group's posts were dominated by self-management; the open diabetes nurses' group was dominated by diabetes awareness. The three social media groups differed substantially in what and how they posted and discussed within the main topics. The nurses' open group had percentage-wise both the most liked and commented post, and the posts on self-management had the highest average number of comments.
There is a big discrepancy in posted information and discussions on social media, between patient closed group, patient organization open group, and health care personnel open group. To reach the aim of using social media for better health, there is a need for more information of what is posted and discussed in the other groups, to harmonize and ensure safe and accurate dissemination of information.
社交媒体的使用正在迅速增加，在医疗保健和糖尿病领域也是如此。然而，患者、医护人员和患者组织在社交媒体上讨论糖尿病的方式却大不相同。这导致这些利益相关者在交流糖尿病相关话题时缺乏共同基础，并且在理解彼此观点方面存在差距。如果每个利益相关者群体都了解、承认并接受彼此的观点，社交媒体就有改善沟通的潜力。
我们从挪威的三个脸书群组中提取并分析了帖子，这三个群组分别代表患者、患者组织和医护人员。进行了定性内容分析以找出主要类别的分布情况，随后对所发布和讨论的子类别进行了主题分析。
患者组织的帖子在四个主要确定类别中分布最为均衡：科学内容、医疗保健服务、自我管理和糖尿病认知。封闭患者群组的帖子以自我管理为主；开放的糖尿病护士群组以糖尿病认知为主。这三个社交媒体群组在主要话题内发布和讨论的内容及方式上有很大差异。护士开放群组的帖子按百分比计算是点赞和评论最多的，而关于自我管理的帖子平均评论数最高。
在患者封闭群组、患者组织开放群组和医护人员开放群组之间，社交媒体上发布的信息和讨论存在很大差异。为了实现利用社交媒体促进健康的目标，需要更多关于其他群组所发布和讨论内容的信息，以协调并确保信息的安全准确传播。
