Moreno M N, Morales Fernández L, Ruiz Medrano M, Martínez de la Casa J M, Madrigal Sánchez R, Hernández García E, Gómez de Liaño R, García Feijoo J
Unidad de Glaucoma, Servicio de Oftalmología, Instituto de Investigación Sanitaria del Hospital Clínico San Carlos (IdISSC), Madrid, España.
Unidad de Glaucoma, Servicio de Oftalmología, Instituto de Investigación Sanitaria del Hospital Clínico San Carlos (IdISSC), Madrid, España.
Arch Soc Esp Oftalmol (Engl Ed). 2019 Mar;94(3):119-124. doi: 10.1016/j.oftal.2018.09.001. Epub 2018 Nov 13.
To evaluate the effect of glaucoma on visual function, as well as quality of life in children and quality of life perceived by caregivers in children up to 16 years of age.
An observational and prospective study was designed using the questionnaire GQL-15 (Glaucoma Quality of Life) and conducted on children and caregivers. The questionnaire VFQ-25 (Visual Functioning Questionnaire) was conducted on children. Different variables of the clinical history that could influence the quality of life and visual function were recorded.
The study included 24 patients with a mean age of 9.13±3.08 years, and included 3 with unilateral involvement, and 20 diagnosed with primary congenital glaucoma. Parents reported a worse quality of life than children. The result of the GQL-15 survey was 32.3±11.56 points in children and 37.52±14.59 points in caregivers (P=.001). The parameter most related to quality of life and visual function was the mean deviation (MD) of the visual field in the best eye. A statistically significant correlation was found between the result of GQL-15 and the mean deviation of the visual field (children: R=0.63, P<.01, caregivers: R=0.81, P<.001).
Functional loss has an impact on the quality of life and visual function in children with glaucoma, although the quality of life perceived by the caregivers is worse than that perceived by the child.
评估青光眼对16岁以下儿童视觉功能、生活质量以及照顾者所感知的儿童生活质量的影响。
设计了一项观察性前瞻性研究，使用青光眼生活质量问卷（GQL - 15）对儿童及其照顾者进行调查。对儿童使用视觉功能问卷（VFQ - 25）。记录了临床病史中可能影响生活质量和视觉功能的不同变量。
该研究纳入了24例患者，平均年龄为9.13±3.08岁，其中3例为单侧受累，20例诊断为原发性先天性青光眼。父母报告的生活质量比儿童更差。GQL - 15调查结果显示，儿童为32.3±11.56分，照顾者为37.52±14.59分（P = 0.001）。与生活质量和视觉功能最相关的参数是最佳眼视野的平均偏差（MD）。GQL - 15结果与视野平均偏差之间存在统计学显著相关性（儿童：R = 0.63，P < 0.01；照顾者：R = 0.81，P < 0.001）。
功能丧失对青光眼患儿的生活质量和视觉功能有影响，尽管照顾者所感知的生活质量比儿童所感知的更差。
