Department of Language and Literacy Education, Faculty of Education, University of British Columbia, Vancouver, BC, Canada.
Department of Language and Literacy Education, UBC, Vancouver, BC, Canada.
J Med Humanit. 2020 Sep;41(3):341-361. doi: 10.1007/s10912-018-9542-0.
Canadian and American population-based research concerning sexual and/or gender minority populations provides evidence of persistent breast and gynecologic cancer-related health disparities and knowledge divides. The Cancer's Margins research investigates the complex intersections of sexual and/or gender marginality and incommensurabilities and improvisation in engagements with biographical and biomedical cancer knowledge. The study examines how sexuality and gender are intersectionally constitutive of complex biopolitical mappings of cancer health knowledge that shape knowledge access and its mobilization in health and treatment decision-making. Interviews were conducted with a diverse group (n=81) of sexual and/or gender minority breast or gynecologic cancer patients. The LGBQ//T2 cancer patient narratives we have analyzed document in fine grain detail how it is that sexual and/or gender minority cancer patients punctuate the otherwise lockstep assemblage of their cancer treatment decision-making with a persistent engagement in creative attempts to resist, thwart and otherwise manage the possibility of discrimination and likewise, the probability of institutional erasure in care settings. Our findings illustrate the demands that cancer places on LGBQ//T2 patients to choreograph access to, and mobilization of knowledge and care, across significantly distinct and sometimes incommensurable systems of knowledge.
加拿大和美国的基于人群的研究涉及性少数群体和/或性别少数群体，提供了持续存在的乳腺癌和妇科癌症相关健康差距和知识鸿沟的证据。“癌症边缘”研究调查了性和/或性别边缘化以及在与传记和生物医学癌症知识的参与中的不可通约性和即兴创作的复杂交叉点。该研究考察了性别和性是如何交叉构成癌症健康知识的复杂生物政治映射的，这些映射塑造了知识获取及其在健康和治疗决策中的调动。对一组（n=81）不同的性少数群体和/或性别少数群体的乳腺癌或妇科癌症患者进行了访谈。我们分析的 LGBQ//T2 癌症患者叙述详细记录了性少数群体和/或性别少数群体癌症患者如何在其癌症治疗决策的整体一致的情况下，不断地参与创造性的尝试，以抵制、挫败和管理歧视的可能性，以及在护理环境中机构被忽视的可能性。我们的研究结果说明了癌症对 LGBQ//T2 患者的要求，即需要精心编排获取知识和护理的途径，并在明显不同且有时不可通约的知识系统中调动知识和护理。
