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印度西孟加拉邦一个麻风病流行地区麻风病患者的生活质量

Quality of Life of Persons Affected by Leprosy in an Endemic District, West Bengal, India.

作者信息

Govindharaj Pitchaimani, Srinivasan Sampathkumar, Darlong Joydeepa

机构信息

Department of Sociology, Bharathidasan University, Tiruchirappalli, Tamil Nadu, India.

Department of Sociology and Population Studies, Bharathiar University, Coimbatore, Tamil Nadu, India.

出版信息

Indian J Dermatol. 2018 Nov-Dec;63(6):459-464. doi: 10.4103/ijd.IJD_324_18.

Abstract

INTRODUCTION

Leprosy still remains a public health problem in India. Stigma and associated psychosocial problems are common in leprosy and may affect the quality of life (QoL). This study aimed to assess the QoL of the person affected by leprosy living in Purulia district, West Bengal.

METHODS

A cross-sectional study was conducted among 358 persons affected by leprosy above the age of 18 years and who were reporting at tertiary leprosy referral hospital, Purulia, West Bengal, from April to July 2017. The World Health Organization QoL (WHOQOL-BREF) scale was used to measure the QoL and the scale had four domain; physical health, psychological health, social relationship, and environmental health.

RESULTS

Of the 358 respondents, 41% were female, 60% were aged between 18 and 45 years, and 58% were literate. Half of the participants (55%) were farmer and labor, and 75% of the participants' family income was below Rs. 5000 per month. One hundred and forty-four (40%) participants had physical disability. There was a highly significant difference seen among the person affected by leprosy between those with visible deformity and no deformity in four domains. The participants with visible deformity had lower QoL than the person without deformity.

CONCLUSION

The study observed that the person affected by leprosy with visible deformity had lower QoL. Early detection and management would prevent the deformity and might improve the QoL of persons affected by leprosy.

摘要

引言

麻风病在印度仍然是一个公共卫生问题。耻辱感及相关的社会心理问题在麻风病患者中很常见,可能会影响生活质量(QoL)。本研究旨在评估生活在西孟加拉邦普鲁利亚区的麻风病患者的生活质量。

方法

2017年4月至7月,对358名年龄在18岁以上、前往西孟加拉邦普鲁利亚三级麻风病转诊医院就诊的麻风病患者进行了一项横断面研究。采用世界卫生组织生活质量量表(WHOQOL-BREF)来测量生活质量,该量表有四个领域:身体健康、心理健康、社会关系和环境卫生。

结果

在358名受访者中,41%为女性,60%年龄在18至45岁之间,58%识字。一半的参与者(55%)是农民和劳工,75%的参与者家庭月收入低于5000卢比。144名(40%)参与者有身体残疾。在四个领域中,有明显畸形和无畸形的麻风病患者之间存在高度显著差异。有明显畸形的参与者的生活质量低于无畸形的参与者。

结论

该研究观察到,有明显畸形的麻风病患者的生活质量较低。早期发现和管理可以预防畸形,并可能改善麻风病患者的生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/629a/6233046/e46983cd1754/IJD-63-459-g002.jpg

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