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利益相关者参与健康研究实用指南

Practical Guidance for Involving Stakeholders in Health Research.

机构信息

The RAND Corporation, Boston, MA, USA.

Tufts Clinical and Translational Science Institute, Tufts University, Boston, MA, USA.

出版信息

J Gen Intern Med. 2019 Mar;34(3):458-463. doi: 10.1007/s11606-018-4738-6. Epub 2018 Dec 18.

Abstract

Stakeholder engagement is increasingly common in health research, with protocols for engaging multiple stakeholder groups becoming normative in patient-centered outcomes research. Previous work has focused on identifying relevant stakeholder groups with whom to work and on working with stakeholders in evidence implementation. This paper draws on the expertise of a team from four countries-Canada, Australia, the UK, and the USA-to provide researchers with practical guidance for carrying out multi-stakeholder-engaged projects: we present a list of questions to assist in selecting appropriate roles and modes of engagement; we introduce a matrix to help summarize engagement activities; and we provide a list of online resources. This guidance, matrix, and list of resources can assist researchers to consider more systematically which stakeholder groups to involve, in what study roles, and by what modes of engagement. By documenting how stakeholders are paired up with specific roles, the matrix also provides a potential structure for evaluating the impact of stakeholder engagement.

摘要

利益相关者的参与在健康研究中越来越普遍,在以患者为中心的结局研究中,与多个利益相关者群体合作的方案已经成为规范。以前的工作重点是确定与之合作的相关利益相关者群体,并在证据实施过程中与利益相关者合作。本文借鉴了来自四个国家(加拿大、澳大利亚、英国和美国)的一个团队的专业知识,为研究人员提供了开展多方利益相关者参与项目的实用指南:我们提出了一系列问题,以协助选择适当的角色和参与模式;我们引入了一个矩阵来帮助总结参与活动;并提供了一系列在线资源。本指南、矩阵和资源列表可以帮助研究人员更系统地考虑让哪些利益相关者群体参与,以什么研究角色参与,以及通过什么参与模式参与。通过记录利益相关者如何与特定角色相匹配,该矩阵还为评估利益相关者参与的影响提供了一个潜在的结构。

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本文引用的文献

2
Patient, caregiver and clinician views on engagement in comparative effectiveness research.
J Comp Eff Res. 2017 May;6(3):231-244. doi: 10.2217/cer-2016-0062. Epub 2017 Feb 8.
3
Health researcher views on comparative effectiveness research and research engagement.
J Comp Eff Res. 2017 May;6(3):245-256. doi: 10.2217/cer-2016-0063. Epub 2017 Feb 8.
6
HIV, breast cancer and vaccines: what do high-profile cases reveal about stakeholder engagement in research?
J Comp Eff Res. 2017 Jan;6(1):43-49. doi: 10.2217/cer-2016-0035. Epub 2016 Sep 2.
7
Patient and Caregiver Priorities for Outcomes in Hemodialysis: An International Nominal Group Technique Study.
Am J Kidney Dis. 2016 Sep;68(3):444-54. doi: 10.1053/j.ajkd.2016.02.037. Epub 2016 Mar 8.
9
Can patient centered outcomes research improve healthcare?
BMJ. 2015 Jul 31;351:h3859. doi: 10.1136/bmj.h3859.
10
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J Gen Intern Med. 2016 Jan;31(1):13-21. doi: 10.1007/s11606-015-3450-z. Epub 2015 Jul 10.

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