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本文引用的文献

1
Disparities in completion rates of the medical prerenal transplant evaluation by race or ethnicity and gender.医学肾移植术前评估完成率在种族、族裔和性别方面的差异。
Transplantation. 2015 Jan;99(1):236-42. doi: 10.1097/TP.0000000000000271.
2
Impact of navigators on completion of steps in the kidney transplant process: a randomized, controlled trial.导航员对肾移植过程中各步骤完成情况的影响:一项随机对照试验。
Clin J Am Soc Nephrol. 2012 Oct;7(10):1639-45. doi: 10.2215/CJN.11731111. Epub 2012 Jul 12.
3
Understanding the processes of patient navigation to reduce disparities in cancer care: perspectives of trained navigators from the field.了解患者导航流程以减少癌症护理中的差异:来自该领域的专业导航员的观点。
J Cancer Educ. 2011 Mar;26(1):111-20. doi: 10.1007/s13187-010-0122-x.
4
Rates of completion of the medical evaluation for renal transplantation.肾移植医学评估的完成率。
Am J Kidney Dis. 2005 Oct;46(4):734-45. doi: 10.1053/j.ajkd.2005.06.011.
5
Why hemodialysis patients fail to complete the transplantation process.为何血液透析患者无法完成移植过程。
Am J Kidney Dis. 2001 Feb;37(2):321-8. doi: 10.1053/ajkd.2001.21297.
6
Racial disparities in access to renal transplantation--clinically appropriate or due to underuse or overuse?肾移植可及性方面的种族差异——是临床合理的,还是因使用不足或过度使用所致?
N Engl J Med. 2000 Nov 23;343(21):1537-44, 2 p preceding 1537. doi: 10.1056/NEJM200011233432106.
7
Comparison of mortality in all patients on dialysis, patients on dialysis awaiting transplantation, and recipients of a first cadaveric transplant.透析患者、等待移植的透析患者以及首次尸体器官移植受者的死亡率比较。
N Engl J Med. 1999 Dec 2;341(23):1725-30. doi: 10.1056/NEJM199912023412303.
8
Barriers to cadaveric renal transplantation among blacks, women, and the poor.黑人、女性及贫困人口在尸体肾移植方面面临的障碍。
JAMA. 1998 Oct 7;280(13):1148-52. doi: 10.1001/jama.280.13.1148.

肾移植受者作为患者导航员的经历。

Experiences of Kidney Transplant Recipients as Patient Navigators.

作者信息

Sullivan C, Dolata J, Barnswell K V, Greenway K, Kamps C M, Marbury Q, Pencak J A, Wilson D, Perzynski A T, Sehgal A R, Huml A M

机构信息

Center for Reducing Health Disparities, Case Western Reserve University, Cleveland, OH.

Division of Transplantation, Department of Surgery, University of Louisville, Louisville, KY.

出版信息

Transplant Proc. 2018 Dec;50(10):3346-3350. doi: 10.1016/j.transproceed.2018.02.090.

DOI:10.1016/j.transproceed.2018.02.090
PMID:30577205
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6310030/
Abstract

BACKGROUND AND OBJECTIVE

The use of trained kidney transplant recipients as patient navigators resulted in increased completion of the steps in the transplant process by dialysis patients. We sought to understand the experiences of these patient navigators.

SETTING AND PARTICIPANTS

Six kidney transplant recipients were hired and employed by transplant centers in Ohio, Kentucky, and Indiana. The transplant navigators received formal training as peer educators, met with dialysis patients on a regular basis, and provided tailored education and assistance about transplantation to each patient. They worked closely with the pretransplant coordinators and social workers to learn the details of each patient's transplant work-up.

METHODOLOGY

We queried navigators using open-ended questions to learn about their experiences. Navigator responses were coded and common themes identified. A thematic auditor reviewed and refined the coding.

RESULTS

Two primary categories of themes emerged about the navigator experience: 1. practical comments that supported programmatic or implementation observations of the navigators, and 2. affective comments that reflected a shared experience among the navigators and patients. The navigators were able to fill voids in the transplant process that were not fulfilled by other caregivers. This was accomplished by a natural bond based upon a shared experience (of dialysis and kidney failure) between the navigator and the patient. The patient and navigator became experiential partners.

CONCLUSION

Kidney transplant recipients trained as patient navigators fill the role of a nontraditional medical provider, offer support during the transplant process, and provide an added benefit to complement routine dialysis and nephrology care.

摘要

背景与目的

使用经过培训的肾移植受者作为患者导航员,可提高透析患者在移植过程中各步骤的完成率。我们试图了解这些患者导航员的经历。

设置与参与者

六名肾移植受者受雇于俄亥俄州、肯塔基州和印第安纳州的移植中心。移植导航员接受了作为同伴教育者的正规培训,定期与透析患者会面,并为每位患者提供有关移植的定制教育和帮助。他们与移植前协调员和社会工作者密切合作,了解每位患者移植检查的详细情况。

方法

我们使用开放式问题询问导航员以了解他们的经历。对导航员的回答进行编码并确定共同主题。一名主题审核员对编码进行了审核和完善。

结果

关于导航员经历出现了两大类主题:1. 支持对导航员进行项目或实施观察的实际意见,以及2. 反映导航员和患者之间共同经历的情感意见。导航员能够填补移植过程中其他护理人员未满足的空白。这是通过基于导航员与患者之间(透析和肾衰竭的)共同经历而形成的自然纽带实现的。患者和导航员成为了经验上的伙伴。

结论

接受培训成为患者导航员的肾移植受者充当了非传统医疗提供者的角色,在移植过程中提供支持,并为常规透析和肾病护理提供补充的额外益处。