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慢性阻塞性肺疾病患者的网络健康行为及两个疾病相关网站的评估

Internet Health Behaviors of Patients with Chronic Obstructive Pulmonary Disease and Assessment of Two Disease Websites.

作者信息

Mahler Donald A, Cerasoli Frank, Della Lindsay, Rudzinski Mark

机构信息

Emeritus Professor of Medicine, Geisel School of Medicine at Dartmouth, Hanover, New Hampshire.

Valley Regional Hospital, Claremont, New Hampshire.

出版信息

Chronic Obstr Pulm Dis. 2018 May 7;5(3):158-166. doi: 10.15326/jcopdf.5.3.2017.0173.

Abstract

Little is known about patients' use of the internet to search for information about chronic obstructive pulmonary disease (COPD) and their perspectives on disease content on websites. To determine the interests and behavior of patients with COPD who search the internet for disease information and to assess their perspectives about 2 COPD educational websites. Individuals with COPD who had registered for a consumer panel were invited electronically to participate in a survey which included general use of the internet, online health behaviors about COPD, and assessment of 2 COPD educational websites. A total of 445 respondents completed the survey in 23 ± 12 minutes (72% response rate). A total of 95% reported that physicians were the primary source of information about COPD followed by internet searches about the disease (76%). The 3 major information priorities were "symptom control" (82%), "how COPD is affecting my body" (60%), and "treatments that might work better for me" (59%). Overall ratings (range, 1 - 10) were 7.4 ± 1.5 for the American Lung Association and 6.8 ±1.8 for the COPD Foundation websites. Ratings by respondents were higher for all 5 impression attributes and for 8 of 9 content attributes on the American Lung Association website compared with the COPD Foundation website. This report describes, for the first time, information priorities of patients with COPD about their disease and their assessment of 2 educational websites. Our survey results can be used by health care professionals to recommend online resources to their patients.

摘要

关于患者利用互联网搜索慢性阻塞性肺疾病(COPD)信息以及他们对网站上疾病内容的看法,目前所知甚少。本研究旨在确定通过互联网搜索疾病信息的慢性阻塞性肺疾病患者的兴趣和行为,并评估他们对两个慢性阻塞性肺疾病教育网站的看法。邀请注册了消费者小组的慢性阻塞性肺疾病患者以电子方式参与一项调查,该调查包括互联网的一般使用情况、关于慢性阻塞性肺疾病的在线健康行为以及对两个慢性阻塞性肺疾病教育网站的评估。共有445名受访者在23±12分钟内完成了调查(回复率为72%)。共有95%的受访者表示医生是关于慢性阻塞性肺疾病信息的主要来源,其次是对该疾病的互联网搜索(76%)。三个主要的信息优先项分别是“症状控制”(82%)、“慢性阻塞性肺疾病如何影响我的身体”(60%)和“可能对我更有效的治疗方法”(59%)。美国肺脏协会网站的总体评分(范围为1 - 10)为7.4±1.5,慢性阻塞性肺疾病基金会网站的评分为6.8±1.8。与慢性阻塞性肺疾病基金会网站相比,美国肺脏协会网站在所有5个印象属性和9个内容属性中的8个方面,受访者给出的评分更高。本报告首次描述了慢性阻塞性肺疾病患者对其疾病的信息优先项以及他们对两个教育网站的评估。医疗保健专业人员可以利用我们的调查结果向患者推荐在线资源。

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