Delis Pamela Coombs
School of Nursing, Salem State University, Salem, MA, USA.
Rehabil Nurs. 2019 Jan/Feb;44(1):2-10. doi: 10.1097/rnj.0000000000000118.
The aim of this study was to explore relationships among health status, uncertainty, and health-related quality of life (HRQOL) in adults with systemic lupus erythematosus (SLE).
The study was a Web-based quantitative study using a predictive correlational design, with nonprobability, convenience sampling.
Adults (n = 196) with SLE living in 31 U.S. states and Puerto Rico participated in the study.
Online data were collected from three regional and one national lupus organization. A correlational design determined relationships among uncertainty, health status, and HRQOL. Regression analysis was completed to identify variations in HRQOL. Demographics were described.
As predicted, inverse relationships occurred between HRQOL and uncertainty, and between mental health and uncertainty. Mental health correlated positively with HRQOL. Physical health correlated with lower HRQOL and higher uncertainty level. Health status plus uncertainty predicted variation in HRQOL.
Findings support use of Mishel's Uncertainty in Illness Theory for exploring factors related to HRQOL in adults with SLE and for designing theory-based interventions such as support groups and coping strategies.
Decreasing uncertainty through education, social support, improvement in health status, and health literacy can positively impact HRQOL in adults with SLE.
本研究旨在探讨系统性红斑狼疮（SLE）成年患者的健康状况、不确定性与健康相关生活质量（HRQOL）之间的关系。
本研究是一项基于网络的定量研究，采用预测性相关设计，采用非概率便利抽样。
居住在美国31个州和波多黎各的196名成年SLE患者参与了本研究。
从三个地区性和一个全国性狼疮组织收集在线数据。相关设计确定了不确定性、健康状况和HRQOL之间的关系。完成回归分析以确定HRQOL的变化。描述了人口统计学特征。
如预期的那样，HRQOL与不确定性之间以及心理健康与不确定性之间存在负相关关系。心理健康与HRQOL呈正相关。身体健康与较低的HRQOL和较高的不确定性水平相关。健康状况加上不确定性可预测HRQOL的变化。
研究结果支持使用米舍尔的疾病不确定性理论来探索与SLE成年患者HRQOL相关的因素，并设计基于理论的干预措施，如支持小组和应对策略。
通过教育、社会支持、改善健康状况和健康素养来降低不确定性，可以对SLE成年患者的HRQOL产生积极影响。
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