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测量心脏病患者的主观幸福感:健康相关生活质量工具的关系和比较。

Measuring subjective wellbeing in patients with heart disease: relationship and comparison between health-related quality of life instruments.

机构信息

Deakin Health Economics, Centre for Population Health Research, Deakin University, Geelong, VIC, Australia.

Global Obesity Centre, Centre for Population Health Research, Deakin University, Geelong, VIC, Australia.

出版信息

Qual Life Res. 2019 Apr;28(4):1017-1028. doi: 10.1007/s11136-018-2094-y. Epub 2019 Jan 2.

Abstract

PURPOSES

This study aimed to validate the use of subjective wellbeing (SWB) in patients with heart disease, to explore the complementary vs substitute relationship between SWB and health status utility (HSU), and to reveal which life domains matter for patients with heart disease compared to healthy persons.

METHODS

Data were obtained from a large multi-national, multi-instrument comparison survey. Subjective wellbeing instruments (ONS4, PWI, SWLS), health status utility instruments (15D, AQoL-8D, EQ-5D-5L, HUI3 and SF-6D) and a disease-specific quality of life instrument (MacNew) were administered among patients with heart disease (N = 943). Validity and sensitivity of SWBs were studied. Exploratory factor analysis (EFA) was performed to examine the difference in descriptive systems between the SWB, HSU and MacNew. The importance of life domain satisfaction in explaining overall life satisfaction was investigated using regression analysis.

RESULTS

The known-group analysis showed that both SWB and HSU scores differed according to changes in the severity of heart disease. EFA showed that SWB and HSU were generally complementary instruments. The life domains that were significantly important to patients with heart disease were standard of living, followed by achieving in life, personal relationships, personal health, and future security. Compared to the healthy public, personal health and future security were significantly more important life domains.

CONCLUSIONS

Assessing SWB provides complementary information on understanding heart patients' subjective outcome over the use of quality of life instruments alone. Given the adverse psychological impact of heart disease, addressing the important domain revealed by SWB assessment in management planning should be considered.

摘要

目的

本研究旨在验证主观幸福感(SWB)在心脏病患者中的应用,探讨 SWB 与健康状况效用(HSU)的互补关系和替代关系,并揭示与健康人群相比,哪些生活领域对心脏病患者更为重要。

方法

数据来自一项大型跨国多仪器比较调查。在心脏病患者(N=943)中使用主观幸福感量表(ONS4、PWI、SWLS)、健康状况效用量表(15D、AQoL-8D、EQ-5D-5L、HUI3 和 SF-6D)和一种疾病特异性生活质量量表(MacNew)进行调查。研究了 SWB 的有效性和敏感性。采用探索性因子分析(EFA)比较 SWB、HSU 和 MacNew 之间描述性系统的差异。采用回归分析探讨生活领域满意度对整体生活满意度的解释作用。

结果

已知组分析显示,SWB 和 HSU 评分均随心脏病严重程度的变化而不同。EFA 显示,SWB 和 HSU 通常是互补的工具。对心脏病患者重要的生活领域是生活水平,其次是实现生活、人际关系、个人健康和未来安全。与健康人群相比,个人健康和未来安全是更重要的生活领域。

结论

评估 SWB 提供了理解心脏病患者主观结局的补充信息,而单独使用生活质量量表则无法提供。鉴于心脏病对心理的不利影响,应考虑在管理计划中解决 SWB 评估揭示的重要领域。

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