Pasterfield Madeline, Clarke Sally-Anne, Thompson Andrew R
Clinical Psychology Unit, Department of Psychology, University of Sheffield, Sheffield, UK.
North Bristol NHS Trust, Bristol, UK.
Scars Burn Heal. 2019 Jan 10;5:2059513118822954. doi: 10.1177/2059513118822954. eCollection 2019 Jan-Dec.
People with a visible difference, such as scarring or a skin condition, can experience anxiety and intrusive reactions from others when in social situations. The use of products to conceal marks on the skin is provided in a number of different hospital services and by charities. However, there are relatively few psychosocial interventions available for these individuals.
To examine the views of skin camouflage users and practitioners on the acceptability, usability and need for a specifically developed cognitive behavioural therapy (CBT) self-help booklet.
A think-aloud protocol and descriptive form of thematic analysis were used to ascertain participants' views of this novel psychosocial intervention. Nine participants took part in think-aloud interviews that were analysed using thematic analysis. Six skin camouflage users and three skin camouflage practitioners participated in the study.
Support for the relevance, acceptability and usability of the booklet was found from both participants who used camouflage and those who provided it. However, some participants reported that they would envisage that some people would need additional support so as to be able to use the techniques described within the booklet.
This study represents an important step towards developing a brief self-help intervention for people with living with visible skin conditions or scars and demonstrates the importance of seeking feedback from experts by experience on theoretically informed psychological interventions for this patient group.
有明显外貌差异的人，如疤痕或皮肤问题患者，在社交场合可能会经历他人的焦虑和侵扰性反应。许多不同的医院服务机构和慈善组织都提供用于遮盖皮肤上印记的产品。然而，针对这些个体的心理社会干预措施相对较少。
研究皮肤伪装使用者和从业者对专门开发的认知行为疗法（CBT）自助手册的可接受性、可用性和需求的看法。
采用出声思考协议和主题分析的描述形式来确定参与者对这种新型心理社会干预措施的看法。九名参与者参加了出声思考访谈，并使用主题分析进行分析。六名皮肤伪装使用者和三名皮肤伪装从业者参与了该研究。
使用伪装的参与者和提供伪装的参与者都对该手册的相关性、可接受性和可用性表示支持。然而，一些参与者表示，他们预计有些人需要额外的支持才能使用手册中描述的技巧。
这项研究是为患有明显皮肤问题或疤痕的人开发简短自助干预措施的重要一步，并证明了从有经验的专家那里寻求关于针对该患者群体的理论指导心理干预措施反馈的重要性。
