运动神经元病的姑息治疗：我们目前的进展如何？
Palliative care in motor neurone disease: where are we now?
作者信息
Oliver David J
机构信息
The Tizard Centre, University of Kent, Canterbury, UK.
出版信息
Palliat Care. 2019 Jan 21;12:1178224218813914. doi: 10.1177/1178224218813914. eCollection 2019.
Abstract
Palliative care has a very important role in the care of patients with motor neurone disease and their families. There is increasing emphasis on the multidisciplinary assessment and support of patients within guidelines, supported by research. This includes the telling of the diagnosis, the assessment and management of symptoms, consideration of interventions, such as gastrostomy and ventilatory support, and care at the end of life. The aim of palliative care is to enable patients, and their families, to maintain as good a quality of life as possible and helping to ensure a peaceful death.
摘要
姑息治疗在运动神经元病患者及其家属的护理中发挥着非常重要的作用。在研究的支持下，越来越强调在指南范围内对患者进行多学科评估和支持。这包括告知诊断结果、症状的评估和管理、对诸如胃造口术和通气支持等干预措施的考虑以及临终护理。姑息治疗的目的是使患者及其家属能够维持尽可能好的生活质量，并帮助确保安详离世。
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