Dimitrov Dimitre, Matusiak Łukasz, Evers Andrea, Jafferany Mohammad, Szepietowski Jacek
Presidential Medical Wing, Al Mafraq and Sheikh Khalifa Medical City, Abu Dhabi, UAE.
Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Poland.
Adv Clin Exp Med. 2019 Jun;28(6):825-832. doi: 10.17219/acem/102617.
Skin diseases are frequently the reason for social rejection. Therefore, the assessment of stigmatization level in patients suffering from dermatoses plays a crucial role in providing proper health service.
The aim of this study was to create and validate Arabic language versions of stigmatization instruments - the 6-item Stigmatization Scale and the Feelings of Stigmatization Questionnaire.
Development of the Arabic language versions was done with international standards of forward-back translations. The validation was performed on 39 psoriatic individuals. The group included 11 females and 28 males. The subjects were asked to fill out both questionnaires: the 6-item Stigmatization Scale and the Feelings of Stigmatization Questionnaire (Arabic language versions) at the time of examination and 7 days after enrollment for reassessment to evaluate test-retest reliability. During the first visit the patients additionally filled out an already existing Arabic version of Dermatology Life Quality Index (DLQI), which was used as a reference questionnaire.
The results concerning the integrity of instruments were very good, and the Cronbach's α coefficient for both scales was 0.89. The reproducibility level assessed with interclass correlation coefficient (ICC) stood at 0.91 for the 6-item Stigmatization Scale and 0.92 for the Feelings of Stigmatization Questionnaire. There was a strong correlation between total score of the 6-item Stigmatization Scale and DLQI. Significant negative moderate correlation was documented between the Feelings of Stigmatization Questionnaire and DLQI. Moreover, both stigmatization instruments correlated significantly with each other.
The developed Arabic language versions of the abovementioned stigmatization instruments can be successfully used in daily clinical practice as well as in clinical research.
皮肤疾病常常是社会排斥的原因。因此,评估皮肤病患者的污名化程度对于提供适当的医疗服务起着至关重要的作用。
本研究的目的是创建并验证污名化工具的阿拉伯语版本——6项污名化量表和污名化感受问卷。
阿拉伯语版本的开发按照国际标准进行了正向-反向翻译。对39名银屑病患者进行了验证。该组包括11名女性和28名男性。受试者被要求在检查时填写两份问卷:6项污名化量表和污名化感受问卷(阿拉伯语版本),并在入组后第7天进行重新评估以评估重测信度。在首次就诊时,患者还填写了已有的阿拉伯语版皮肤病生活质量指数(DLQI),该指数用作参考问卷。
关于工具完整性的结果非常好,两个量表的Cronbach's α系数均为0.89。用组内相关系数(ICC)评估的可重复性水平,6项污名化量表为0.91,污名化感受问卷为0.92。6项污名化量表的总分与DLQI之间存在强相关性。污名化感受问卷与DLQI之间记录到显著的负中度相关性。此外,两种污名化工具之间也显著相关。
上述污名化工具开发的阿拉伯语版本可成功用于日常临床实践以及临床研究。