Krajewski Piotr K, Matusiak Łukasz, Szepietowska Marta, Rymaszewska Julia E, Jemec Gregor B E, Kirby Joslyn S, Szepietowski Jacek C
Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland.
Student Research Group of Experimental Dermatology, Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland.
Postepy Dermatol Alergol. 2021 Dec;38(6):967-972. doi: 10.5114/ada.2020.97064. Epub 2020 Jul 14.
Hidradenitis suppurativa (HS) is a chronic, inflammatory and painful cutaneous disease which often has a negative influence on patients' quality of life. Dermatology-specific instruments, such as Dermatology Life Quality Index and Skindex, are commonly used to evaluate HS patients' quality of life. However, due to the lack of specific questions, these scales may not be adequate and may not reflect the real problem.
To translate and validate the Polish version of a newly created HS-specific questionnaire - Hidradenitis Suppurativa Quality of Life (HiSQOL).
A forward and backward translation was conducted from the original English version of the questionnaire to Polish language according to international standards. The validation was performed on a group of 30 patients suffering from HS, who completed the questionnaire twice with a 4-5 days' interval.
The Polish version of HiSQOL questionnaire showed a very good internal consistency (Cronbach α coefficient was 0.96 for total score). Excellent reproducibility with the intraclass correlation coefficient (ICC) of 0.97 was demonstrated.
The Polish version of HiSQOL questionnaire has high internal reliability, validity and reproducibility. It can be used as a tool to assess health-related quality of life in the patients suffering from hidradenitis suppurativa.
化脓性汗腺炎（HS）是一种慢性、炎症性且疼痛的皮肤病，常对患者的生活质量产生负面影响。皮肤科专用工具，如皮肤病生活质量指数和皮肤指数，常用于评估HS患者的生活质量。然而，由于缺乏特定问题，这些量表可能并不充分，可能无法反映实际问题。
翻译并验证新创建的特定于HS的问卷——化脓性汗腺炎生活质量（HiSQOL）波兰语版本。
根据国际标准，对问卷的原始英文版本进行了从英文到波兰语的正向和反向翻译。对30名HS患者进行了验证，这些患者在间隔4 - 5天的时间内两次完成问卷。
HiSQOL问卷的波兰语版本显示出非常好的内部一致性（总分的Cronbach α系数为0.96）。组内相关系数（ICC）为0.97，证明具有出色的可重复性。
HiSQOL问卷的波兰语版本具有较高的内部可靠性、有效性和可重复性。它可作为评估化脓性汗腺炎患者健康相关生活质量的工具。
