Krajewski Piotr K, Bardowska Klaudia, Matusiak Łukasz, Szepietowska Marta, Tyczyńska Kinga, Marron Servando E, Tomas Aragones Lucía, Szepietowski Jacek C
Department of Dermatology, Venereology, and Allergology, Wroclaw Medical University, Wroclaw, Poland.
Student Research Group of Experimental Dermatology, Department of Dermatology, Venereology, and Allergology, Wroclaw Medical University, Wroclaw, Poland.
Postepy Dermatol Alergol. 2022 Dec;39(6):1053-1058. doi: 10.5114/ada.2022.114885. Epub 2022 Mar 27.
Hidradenitis suppurativa (HS) is a chronic, inflammatory skin disorder with a well-documented impact on quality of life (QoL). Due to the very distinctive features of HS the clinical picture, and lack of specific questions, generic dermatology QoL questionnaires cannot adequately reflect patients' suffering.
To translate and validate the Polish version of the Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) questionnaire.
The standardized translation process included forward and backward translation from the English version of the instrument. The final version was subsequently validated on a group of 30 HS patients, who completed the questionnaire twice. Internal consistency, test-retest reliability, and reproducibility of the results were also analysed.
The Polish version of HSQoL-24 showed excellent internal consistency, with a Cronbach α coefficient of 0.908. Moreover, excellent reproducibility of the results was observed, with an intraclass correlation coefficient of 0.908. The HSQoL global score correlated positively with Dermatology Life Quality Index (DLQI) and Hidradenitis Suppurativa Quality of Life (HiSQoL) questionnaire.
The Polish version of HSQoL-24 has excellent internal consistency, good reproducibility, and adequate validity. It may be of help in assessing QoL impairment in HS patients in daily practice and research.
化脓性汗腺炎(HS)是一种慢性炎症性皮肤病,对生活质量(QoL)的影响已得到充分记录。由于HS的临床表现非常独特,且缺乏特定问题,通用的皮肤病生活质量问卷无法充分反映患者的痛苦。
翻译并验证波兰语版的化脓性汗腺炎生活质量24(HSQoL-24)问卷。
标准化翻译过程包括从该工具的英文版进行正向和反向翻译。最终版本随后在一组30名HS患者中进行验证,这些患者完成问卷两次。还分析了结果的内部一致性、重测信度和可重复性。
波兰语版HSQoL-24显示出出色的内部一致性,Cronbach α系数为0.908。此外,观察到结果具有出色的可重复性,组内相关系数为0.908。HSQoL总体评分与皮肤病生活质量指数(DLQI)和化脓性汗腺炎生活质量(HiSQoL)问卷呈正相关。
波兰语版HSQoL-24具有出色的内部一致性、良好的可重复性和充分的效度。它可能有助于在日常实践和研究中评估HS患者的生活质量损害。