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患者独特污名化整体工具(PUSH-D):皮肤病学特异性污名评估工具的开发与验证。

Patient Unique Stigmatization Holistic tool in dermatology (PUSH-D): Development and validation of a dermatology-specific stigmatization assessment tool.

机构信息

EA 7379 EpidermE, Université Paris-Est Créteil (UPEC), Créteil, France.

Department of Dermatology, Henri Mondor University Hospital, AP-HP, Créteil, France.

出版信息

J Eur Acad Dermatol Venereol. 2023 Feb;37(2):443-450. doi: 10.1111/jdv.18641. Epub 2022 Oct 25.

Abstract

BACKGROUND

The skin plays an important role in establishing interpersonal relationships, and thus visible skin disorders, which have a significant impact on physical appearance, influence other people's behaviours and attitudes.

OBJECTIVE

To develop and validate a dermatologic-specific questionnaire to evaluate stigmatization in individuals with visible skin conditions.

METHODS

Items were generated by a verbatim report based on qualitative interviews with patients with various dermatologic conditions. Subsequently, a study was implemented for psychometric analysis. A dermatology-specific stigmatization questionnaire (PUSH-D) was refined via item reduction according to inter-question correlations, consensus among experts and exploratory factor analysis. Internal consistency was determined by calculating Cronbach's α. Concurrent validity was determined by calculating the correlation between PUSH-D and the Dermatology Life Quality Index (DLQI) and the Rosenberg Self-Esteem Scale (RSES).

RESULTS

From a primary list of 22 items, PUSH-D was reduced to a 17-item questionnaire, covering two pertinent dimensions based on the exploratory factor analysis. Construct validity was demonstrated, and PUSH-D showed good internal consistency (Cronbach's α = 0.9). PUSH-D correlated strongly with the DLQI 0.72 (p < 0.001) and moderately with the RSES 0.49 (p < 0.001).

CONCLUSION

PUSH-D allows a comprehensive view of the degree of stigmatization in visible skin disorders, as well as the comparability of stigmatization levels across various skin conditions.

摘要

背景

皮肤在人际关系的建立中起着重要作用,因此可见的皮肤疾病对外观有重大影响,会影响他人的行为和态度。

目的

开发和验证一种专门针对皮肤科的问卷,以评估有可见皮肤状况的个体的污名化。

方法

根据有各种皮肤科疾病的患者的定性访谈的逐字报告生成项目。随后,进行了一项心理测量学分析研究。通过根据问题之间的相关性、专家共识和探索性因素分析来减少项目,对皮肤科特定的污名化问卷(PUSH-D)进行了精炼。通过计算 Cronbach's α 来确定内部一致性。通过计算 PUSH-D 与皮肤病生活质量指数(DLQI)和罗森伯格自尊量表(RSES)之间的相关性来确定同时效度。

结果

从最初的 22 个项目列表中,PUSH-D 被简化为一个 17 项的问卷,根据探索性因素分析涵盖了两个相关维度。证明了结构效度,PUSH-D 显示出良好的内部一致性(Cronbach's α=0.9)。PUSH-D 与 DLQI 高度相关(0.72,p<0.001),与 RSES 中度相关(0.49,p<0.001)。

结论

PUSH-D 可以全面了解可见皮肤疾病的污名化程度,以及各种皮肤状况之间的污名化水平的可比性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f355/10092236/5076e08e199f/JDV-37-443-g001.jpg

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