Casey James J, Harrison Krista L, Ventura Maria I, Mehling Wolf, Barnes Deborah E
San Francisco Veterans Affairs Health Care System, San Francisco, CA, USA.
Division of Geriatrics, School of Medicine, University of California San Francisco, San Francisco, CA, USA.
Aging Ment Health. 2020 Jun;24(6):971-977. doi: 10.1080/13607863.2018.1553142. Epub 2019 Feb 12.
To understand feedback from participants in Paired PLIÉ (Preventing Loss of Independence through Exercise), a novel, integrative group movement program for people with dementia and their care partners, in order to refine the intervention and study procedures. Data sources included daily logs from the first Paired PLIÉ RCT group, final reflections from the second Paired PLIÉ RCT group, and responses to requests for feedback and letters of support from Paired PLIÉ community class participants. All data are reports from care partners. The qualitative coding process was iterative and conducted with a multidisciplinary team. The coding team began with a previously established framework that was modified and expanded to reflect emerging themes. Regular team meetings were held to confirm validity and to reach consensus around the coding system as it was developed and applied. Reliability was checked by having a second team member apply the coding system to a subset of the data. Key themes that emerged included care partner-reported improvements in physical functioning, cognitive functioning, social/emotional functioning, and relationship quality that were attributed to participation in Paired PLIÉ. Opportunities to improve the intervention and reduce study burden were identified. Care partners who transitioned to the community class after participating in the Paired PLIÉ study reported ongoing benefits. These qualitative results show that people with dementia and their care partners can participate in and benefit from community-based programs like Paired PLIÉ that include both partners, and focus on building skills to maintain function and quality of life.
为了解成对式PLIÉ(通过运动预防独立能力丧失)参与者的反馈,该项目是一项针对痴呆症患者及其护理伙伴的新型综合团体运动项目,旨在完善干预措施和研究程序。数据来源包括第一个成对式PLIÉ随机对照试验组的每日日志、第二个成对式PLIÉ随机对照试验组的最终反馈,以及成对式PLIÉ社区课程参与者对反馈请求和支持信的回复。所有数据均为护理伙伴的报告。定性编码过程是迭代的,由一个多学科团队进行。编码团队从一个先前建立的框架开始,该框架经过修改和扩展以反映新出现的主题。定期召开团队会议以确认有效性,并在编码系统的开发和应用过程中就其达成共识。通过让另一名团队成员将编码系统应用于一部分数据来检查可靠性。出现的关键主题包括护理伙伴报告称,由于参与成对式PLIÉ,身体功能、认知功能、社会/情感功能以及关系质量有所改善。确定了改进干预措施和减轻研究负担的机会。在参与成对式PLIÉ研究后过渡到社区课程的护理伙伴报告称持续受益。这些定性结果表明,痴呆症患者及其护理伙伴可以参与像成对式PLIÉ这样的社区项目并从中受益,这些项目包括双方伙伴,并专注于培养维持功能和生活质量的技能。