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健康素养与智障人士:已知、未知与所需:理论探讨。

Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse.

机构信息

Department of Nursing and Health, Bielefeld University of Applied Sciences, Interaktion 1, 33619 Bielefeld, Germany.

Faculty of Educational Science, Bielefeld University, Konsequenz 41A, 33619 Bielefeld, Germany.

出版信息

Int J Environ Res Public Health. 2019 Feb 5;16(3):463. doi: 10.3390/ijerph16030463.

DOI:10.3390/ijerph16030463
PMID:30764539
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6388359/
Abstract

Although health literacy is widely discussed and many heterogeneous conceptualizations exist, people with intellectual disabilities have remained largely unconsidered. The purpose of this conceptual paper is to analyze the particularities of this target group and discuss and consider implications that arise when conceptualizing the health literacy of people with intellectual disabilities. Therefore, we explore relevant approaches from multiple disciplines and examine their transferability to a conceptual understanding of health literacy for people with intellectual disabilities. For future directions we identified three main dimensions: (1) disentangle health literacy from empowerment; (2) apply a positive, asset-based focus to health literacy; and (3) focus on health literacy as a distributed resource across individuals and their individual life-world.

摘要

尽管健康素养已被广泛讨论,并且存在许多不同的概念化,但智障人士在很大程度上仍未被考虑在内。本文的目的是分析这一特定群体的特殊性,并讨论和考虑在对智障人士的健康素养进行概念化时出现的影响。因此,我们从多个学科中探索相关方法,并研究其对智障人士健康素养概念理解的可转移性。对于未来的方向,我们确定了三个主要维度:(1)将健康素养从赋权中分离出来;(2)对健康素养采用积极的、以资产为基础的重点;(3)关注健康素养作为个体及其个体生活世界之间分布的资源。

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本文引用的文献

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Does health literacy mediate the relationship between socioeconomic status and health disparities? Integrative review.健康素养是否介导了社会经济地位与健康差距之间的关系?综合综述。
Health Promot Int. 2019 Oct 1;34(5):e1-e17. doi: 10.1093/heapro/day062.
2
Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review.为智力障碍人士提供易于阅读和理解的信息:值得吗?一项元叙述文献综述。
Health Expect. 2017 Dec;20(6):1189-1200. doi: 10.1111/hex.12520. Epub 2016 Nov 16.
3
Systematic Review of Health Promotion Programs Focused on Behavioral Changes for People With Intellectual Disability.系统评价针对智力障碍者行为改变的健康促进计划。
Intellect Dev Disabil. 2016 Feb;54(1):63-76. doi: 10.1352/1934-9556-54.1.63.
4
Randomized Control Trial of the 3Rs Health Knowledge Training Program for Persons with Intellectual Disabilities.针对智障人士的3R健康知识培训项目随机对照试验
J Appl Res Intellect Disabil. 2016 May;29(3):278-88. doi: 10.1111/jar.12186. Epub 2015 May 5.
5
Health information exchange in general practice care for people with intellectual disabilities--a qualitative review of the literature.智障人士全科医疗中的健康信息交流——文献的定性综述
Res Dev Disabil. 2014 Sep;35(9):1978-87. doi: 10.1016/j.ridd.2014.04.029. Epub 2014 May 24.
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'Distributed health literacy': longitudinal qualitative analysis of the roles of health literacy mediators and social networks of people living with a long-term health condition.“分布式健康素养”:对长期健康状况患者的健康素养调解者角色和社交网络的纵向定性分析
Health Expect. 2015 Oct;18(5):1180-93. doi: 10.1111/hex.12093. Epub 2013 Jun 17.
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Health literacy and patient empowerment in health communication: the importance of separating conjoined twins.健康素养和健康传播中的患者赋权:将连体双胞胎分开的重要性。
Patient Educ Couns. 2013 Jan;90(1):4-11. doi: 10.1016/j.pec.2012.09.006. Epub 2012 Oct 12.
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Health literacy and public health: a systematic review and integration of definitions and models.健康素养与公共卫生:系统综述及定义与模式的整合
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Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study.成年智力残疾者的衰老与健康状况:欧洲波莫纳二世研究结果
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New directions in research on public health and health literacy.公共卫生与健康素养研究的新方向。
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