Department of Family and Community Medicine, College of Medicine, The University of Arizona, 655 North Alvernon Way, Tucson, AZ 85711, USA.
Department of Occupational Therapy, Center for Health Equity Research, Northern Arizona University, 1395 Knoles Drive, Flagstaff, AZ 86011, USA.
Int J Environ Res Public Health. 2022 Jul 29;19(15):9280. doi: 10.3390/ijerph19159280.
Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, "What are the influences on breast and cervical cancer screening for Native American women with IDD?" with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.
与其他少数群体一样，残疾人也面临着医疗保健服务不足的问题。智力和发育障碍者（IDD）是一种在儿童时期被诊断出的终身残疾，需要不同程度的支持来完成日常活动，他们接受预防保健的可能性较小，如癌症筛查。此外，与白人女性相比，美国原住民女性接受癌症筛查的可能性也较小。在这项针对美国原住民 IDD 女性及其护理人员、医疗保健和服务提供者以及社区领袖的定性研究中，我们提出了“影响美国原住民 IDD 女性进行乳腺癌和宫颈癌筛查的因素有哪些？”旨在改编现有的癌症筛查教育计划。对 48 名参与者进行了半结构化深入访谈，并进行了逐字转录以进行分析。两名编码员使用恒定性比较方法对预先设定的编码手册进行编码和修订，生成子主题和新的编码。研究结果强调了个人、人际和社区/机构对筛查的影响，突出了社会不平等对这一人群的个体影响，强调了在推荐癌症筛查时存在的对残疾的偏见，以及将传统的认知方式与对抗疗法相结合的机会。这项工作的结果被用来改编针对美国原住民 IDD 女性的癌症筛查教育计划。
