Mongan Institute Health Policy Center, Massachusetts General Hospital, United States.
Center for Bioethics and Humanities, University of Colorado School of Medicine, United States.
Disabil Health J. 2019 Jul;12(3):403-410. doi: 10.1016/j.dhjo.2019.01.010. Epub 2019 Feb 1.
Many factors contribute to the well-recognized health care disparities experienced by persons with disability, including failure of physicians to understand the lives of individuals with disability. Disability cultural competence considers physicians' ability to meet the social, cultural, and linguistic needs of this population.
To assess physicians' understanding of disability cultural competence and attitudes towards patients with disability.
Qualitative analyses of open-ended individual interviews averaging 41 min with 20 Massachusetts physicians from 5 different subspecialties, in practice for 8-51 years. Interview recordings were transcribed verbatim for conventional content analysis.
Most participants defined disability using medically-focused concepts rather than concepts that recognize how social factors contribute to disability. All participants used disability culturally-competent language, such as "person-first language," at some points throughout their interviews. However, most participants also employed language that is now considered unacceptable or archaic, such as variations on the word "handicap," "wheelchair-bound," describing persons with disability as "suffering," and calling persons by their health condition (e.g., "COPDer"). Participants mentioned persons with mental illness and intellectual disability as particularly challenging, especially around communication and performing even routine tests or examinations. Recommendations for improving care included better listening to patients with disability and seeking their views about their care.
In this exploratory study, most participants used language that is considered disability culturally competent at times but also employed many terms and concepts that are considered outdated and may be troubling to some persons with disability.
许多因素导致残疾人士所面临的医疗保健差距问题广为人知,包括医生未能理解残疾人士的生活。残疾文化能力考虑了医生满足残疾人群体的社会、文化和语言需求的能力。
评估医生对残疾文化能力的理解以及对残疾患者的态度。
对来自马萨诸塞州 5 个不同专业的 20 名医生进行了 41 分钟的开放式个人访谈的定性分析,这些医生的从业时间为 8-51 年。访谈录音逐字转录,进行常规内容分析。
大多数参与者使用医学为重点的概念来定义残疾,而不是承认社会因素如何导致残疾的概念。所有参与者在访谈过程中都使用了残疾文化能力强的语言,例如“person-first language”。然而,大多数参与者也使用了现在被认为不可接受或过时的语言,例如“handicap”、“wheelchair-bound”的变体,将残疾人士描述为“受苦”,并根据他们的健康状况称呼他们(例如“COPDer”)。参与者提到精神疾病和智力残疾患者特别具有挑战性,尤其是在沟通和进行常规测试或检查方面。改善护理的建议包括更好地倾听残疾患者的意见,并征求他们对护理的意见。
在这项探索性研究中,大多数参与者有时会使用被认为是残疾文化能力强的语言,但也使用了许多被认为过时且可能令一些残疾人士感到困扰的术语和概念。