School of Public Health, University of Adelaide, North Terrace, Adelaide, South Australia, 5000.
Wardliparingga Aboriginal Health Research, South Australian Health and Medical Research Institute, North Terrace, Adelaide, South Australia, 5000.
Health Qual Life Outcomes. 2019 Feb 18;17(1):39. doi: 10.1186/s12955-019-1107-z.
Australian health surveys occasionally include health utility measures in describing health related quality of life (HRQoL) across the general population. However, the HRQoL of specific population groups, such as Aboriginal and Torres Strait Islander (respectfully referred to as Aboriginal), are poorly understood. Our analysis describes HRQoL utility among Aboriginal South Australians by examining the characteristics of respondents completing HRQoL questioning, the relationship between HRQoL and respondent characteristics, then considers reported HRQoL utility in the wider population context.
Population weighted and self-reported HRQoL was measured using SF-6D, as derived from the SF-12 version 2, in the South Australian Aboriginal Health Survey's face to face interviews with 399 respondents aged 15 or more in 2010/11.
Mean HRQoL utility was 0.77 (95% CIs 0.76-0.79) with marked variations by gender (females 0.03, 95% CIs 0.00-0.06 lower than males), age (with ages 55 or more 0.08, 95% CIs 0.02-0.14 lower than 15-35 years) and number of chronic health conditions (3 or more conditions 0.14, 95% CIs 0.09-0.19 lower than those with 0 conditions). A pattern of response to HRQoL questions was also evident. Response was less likely among respondents speaking Aboriginal languages at home, living in non-urban settings, and experiencing multiple chronic health conditions.
The SF-6D provides useful information on the HRQoL of Aboriginal South Australians. However, non-completion was pronounced among respondents speaking traditional languages and experiencing more chronic health conditions. Improved participation of vulnerable and health compromised respondents through culturally safe and relevant self-reporting HRQoL utility instruments is needed.
澳大利亚健康调查偶尔会包括健康效用衡量标准，以描述普通人群的健康相关生活质量（HRQoL）。然而，对于特定人群群体，如土著和托雷斯海峡岛民（简称土著）的 HRQoL 了解甚少。我们通过检查完成 HRQoL 问题的受访者的特征、HRQoL 与受访者特征之间的关系，然后考虑在更广泛的人口背景下报告的 HRQoL 效用，来描述南澳大利亚土著的 HRQoL 效用。
2010/11 年，在南澳大利亚土著健康调查的面对面访谈中，使用来自 SF-12 版本 2 的 SF-6D 对 399 名 15 岁及以上的受访者进行了加权和自我报告的 HRQoL 测量。
平均 HRQoL 效用为 0.77（95%CI 0.76-0.79），性别（女性比男性低 0.03，95%CI 0.00-0.06）、年龄（55 岁及以上年龄组比 15-35 岁年龄组低 0.08，95%CI 0.02-0.14）和慢性健康状况数量（有 3 种或更多疾病的患者比无疾病的患者低 0.14，95%CI 0.09-0.19）存在显著差异。对 HRQoL 问题的反应模式也很明显。在家中讲土著语言、居住在非城市地区和患有多种慢性健康状况的受访者不太可能做出回应。
SF-6D 提供了有关南澳大利亚土著的 HRQoL 的有用信息。然而，讲传统语言和患有更多慢性健康状况的受访者中，非完成情况很明显。需要通过文化安全和相关的自我报告 HRQoL 效用工具，提高弱势和健康受损受访者的参与度。
