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定性研究以确定南亚裔和英国白人哮喘儿童对哮喘管理的种族特异性看法和障碍。

Qualitative study to identify ethnicity-specific perceptions of and barriers to asthma management in South Asian and White British children with asthma.

机构信息

Population, Policy and Practice, University College London Institute of Child Health, London, UK.

School of Applied Social Sciences, De Montfort University, Leicester, UK.

出版信息

BMJ Open. 2019 Feb 19;9(2):e024545. doi: 10.1136/bmjopen-2018-024545.

Abstract

OBJECTIVE

This paper draws on the data from the Management and Interventions for Asthma (MIA) study to explore the perceptions and experiences of asthma in British South Asian children using semi-structured interviews. A comparable cohort of White British children was recruited to identify whether any emerging themes were subject to variation between the two groups so that generic and ethnicity-specific themes could be identified for future tailored intervention programmes for South Asian children with asthma.

SETTING

South Asian and White British children with asthma took part in semi-structured interviews in Leicester, UK.

PARTICIPANTS

Thirty three South Asian and 14 White British children with asthma and aged 5-12 years were interviewed.

RESULTS

Both similar and contrasting themes emerged from the semi-structured interviews. Interviews revealed considerable similarities in the experience of asthma between the South Asian and White British children, including the lack of understanding of asthma (often confusing trigger with cause), lack of holistic discussions with healthcare professionals (HCPs), an overall neutral or positive experience of interactions with HCPs, the role of the family in children's self-management and the positive role of school and friends. Issues pertinent to South Asian children related to a higher likelihood of feeling embarrassed and attributing physical activity to being a trigger for asthma symptoms.

CONCLUSIONS

The two ethnicity-specific factors revealed by the interviews are significant in children's self-management of asthma and therefore, indicate the need for a tailored intervention in South Asian children.

摘要

目的

本研究利用管理和哮喘干预(MIA)研究的数据,通过半结构化访谈探讨英国南亚裔儿童对哮喘的认知和体验。招募了一组可比的英国白人儿童,以确定任何新出现的主题是否因两组之间的差异而有所不同,从而为未来针对南亚裔哮喘儿童的定制干预计划确定通用和特定族裔的主题。

背景

有哮喘的南亚裔和英国白人儿童在英国莱斯特参加了半结构化访谈。

参与者

33 名南亚裔和 14 名英国白人哮喘儿童,年龄在 5-12 岁之间,接受了访谈。

结果

半结构化访谈中出现了相似和不同的主题。访谈揭示了南亚裔和英国白人儿童哮喘经历的许多相似之处,包括对哮喘缺乏了解(常将诱因与病因混淆)、与医疗保健专业人员(HCP)缺乏全面讨论、与 HCP 互动的整体中性或积极体验、家庭在儿童自我管理中的作用以及学校和朋友的积极作用。与南亚裔儿童相关的问题涉及更有可能感到尴尬,并将体力活动归因于哮喘症状的诱因。

结论

访谈中揭示的两个特定族裔因素对儿童哮喘的自我管理有重要影响,因此表明需要针对南亚裔儿童进行定制干预。

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