Eastern Institute of Technology, Hawke's Bay, New Zealand.
Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Australia; Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Australia.
Int J Med Inform. 2019 Apr;124:78-85. doi: 10.1016/j.ijmedinf.2019.01.013. Epub 2019 Jan 29.
To describe the range of patients' beliefs, attitudes, expectations, and experiences of remote monitoring for chronic conditions across different healthcare contexts and populations.
We searched MEDLINE, Embase, PsychINFO, and CINAHL, Google Scholar, and reference lists of related studies through to July 2017. Thematic synthesis was used to analyse the findings of the primary studies. Study characteristics were examined to explain differences in findings.
All healthcare settings PARTICIPANTS: Adults with chronic diseases OUTCOMES: Patient beliefs, attitudes, expectations and experiences of remote monitoring RESULTS: We included 16 studies involving 307 participants with chronic obstructive pulmonary disease, heart failure, diabetes, hypertension, and end stage kidney disease. The studies were conducted in 8 countries. We identified four themes: gaining knowledge and triggering actions (tracking and responding to change, prompting timely and accessible care, supporting self-management and shared decision-making); reassurance and security (safety in being alone, peace of mind); concern about additional burden (reluctance to learn something new, lack of trust in technology, avoiding additional out-of-pocket costs), and jeopardising interpersonal connections (fear of being lost in data, losing face to face contact).
For patients with chronic disease, remote monitoring increased their disease-specific knowledge, triggered earlier clinical assessment and treatment, improved self-management and shared decision-making. However, these potential benefits were balanced against concerns about losing interpersonal contact, and the additional personal responsibility of remote monitoring.
描述不同医疗环境和人群中,慢性病患者对远程监测的信念、态度、期望和体验的范围。
我们检索了 MEDLINE、Embase、PsychINFO 和 CINAHL、Google Scholar 以及截至 2017 年 7 月的相关研究参考文献列表。使用主题综合分析法分析主要研究的结果。研究特点被用来解释研究结果的差异。
所有医疗环境
慢性病患者
远程监测患者的信念、态度、期望和体验
我们纳入了 16 项研究,共涉及 307 例慢性阻塞性肺疾病、心力衰竭、糖尿病、高血压和终末期肾病患者。这些研究在 8 个国家进行。我们确定了四个主题:获得知识和引发行动(跟踪和响应变化,提示及时和可及的护理,支持自我管理和共同决策);安心和安全(独自生活的安全,安心);对额外负担的担忧(不愿学习新事物,对技术缺乏信任,避免额外的自付费用)和危及人际关系(担心迷失在数据中,面对面接触时失去面子)。
对于慢性病患者,远程监测增加了他们对疾病的特定知识,引发了更早的临床评估和治疗,改善了自我管理和共同决策。然而,这些潜在的好处需要与失去人际联系的担忧以及远程监测的额外个人责任相平衡。